Comments on: Thank heaven for little labels

By: pollyannapenguin

pollyannapenguin — Fri, 13 Jun 2008 20:34:34 +0000

Well I understand your frustration but you know, maybe they’re right… at least some of the time! I guess it’s a matter of finding a compromise between ‘don’t wrap me in cotton wool’ and ‘I’m going to beat this’ versus ‘This is something I’ve got to learn to live with’. I love learning, but I have to say learning to live with this is NOT fun!

By: Beth

Beth — Mon, 09 Jun 2008 22:37:01 +0000

I was diagnosed about a week ago and that ‘little label’ has been a bit of a blessing and a bit of an annoyance! The blessing is that my husband and I have something ‘concrete’ we can learn about and make real adjustments for. And we do need to make adjustments! We have a large house with large yards. That might not last long!

The annoyance is that, since my diagnosis, my well meaning friends and co-workers jump in and don’t let me lift, carry or do much of anything physically, even when I insist that I at least try!

I wish you well and hope we can help one another on this adventure!

By: pollyannapenguin

pollyannapenguin — Fri, 06 Jun 2008 20:53:01 +0000

So glad someone else understands what I mean. ;o)

It didn’t help that I’d had sundry other nebulous problems over the years that never did get fully diagnosed – now I look back on them I wonder how many were related to RA! That’ll be the subject of another post when I have the energy to write it!

By: raandme

raandme — Fri, 06 Jun 2008 20:22:07 +0000

I understand your feelings about the labels. The first time I had xrays taken I cried. Because I finally had some validation. I finally had proof, and everyone had to believe me.
It’s hard enough to deal with the pain. It makes it worse when you feel like people dont believe you.