Comments on: Thank goodness for my iPOD (Yes, this is an RA-related post!) http://pollyannapenguin.wordpress.com/2009/02/01/thank-goodness-for-my-ipod-yes-this-is-an-ra-related-post/ This is a blog about me, my recently diagnosed rheumatoid arthritis and my struggles to stay positive about it! Thu, 23 May 2013 11:06:47 +0000 hourly 1 http://wordpress.com/ By: pollyannapenguin http://pollyannapenguin.wordpress.com/2009/02/01/thank-goodness-for-my-ipod-yes-this-is-an-ra-related-post/#comment-135 Tue, 24 Feb 2009 13:21:08 +0000 http://pollyannapenguin.wordpress.com/2009/02/01/thank-goodness-for-my-ipod-yes-this-is-an-ra-related-post/#comment-135 No, no, no … there’s a reason why the post you’re responding to here was deleted, Robin – ’cause it was … how shall I put this politely … a load of … well you get the idea. I wasn’t actually aiming at you specifically (although you may find this hard to believe! ) and I was just having a really rotten day, which was part of a really rotten week!

The great thing about blogs is that you can NEVER shove anything down anyone’s throat and if they don’t like your blog they don’t have to read it. I like your blog! ;o)

I know I’ve been lucky with the meds so far – and I’ve not had to suffer this horrible illness for nearly as long as you either. And to be blunt you’ve probably got more years left to put up with it than I have too, being 20 years younger (approx).

Thanks for the diet info – two really, really interesting points for me there – one is that a flare lasts longer than two weeks. I have really struggled to get ANY sensible information from either RA medics or the RA forum about what constitutes a flare. I thought they lasted a few days, but I’ve had periods that have been really crappy and lasted a couple of weeks or even maybe three weeks or so, and I’ve just thought ‘Damn it, don’t tell me the MTX is already not working’ (knowing that it tends to lose its effectiveness after a few years, usually).

The second interesting point is that you see diet effects within two weeks – I had no idea that it could be that fast.

I’m off to read your blog now to see how your diet stuff is going – I’ve been madly busy at work (still am) and when I get home the last thing I want to do is look at a PC, so I’ve been quiet for a little while, but I miss catching up on how everyone’s doing. ;o)

]]> By: thetruthaboutjra http://pollyannapenguin.wordpress.com/2009/02/01/thank-goodness-for-my-ipod-yes-this-is-an-ra-related-post/#comment-132 Sat, 21 Feb 2009 19:14:23 +0000 http://pollyannapenguin.wordpress.com/2009/02/01/thank-goodness-for-my-ipod-yes-this-is-an-ra-related-post/#comment-132 pp-
yea, I understand. I’m sorry if i’ve shoved it down your throat. I know that it comes off like that, but I think I have a good way to explain why (at least why I sound like i think all conventional meds are evil.)
Well, first of all, those who have become natural healing fans are usually the ones who has a very traumatic or life-threatening experience as a direct result of a conventional medicine. This happened to me. So, we are driven to try something that won’t actually kill us or put us in more pain than the disease itself. If we are successful, we can come off as a little snobbish and against conventional meds. Sorry about that. I do realize that some med do really help ppl with RA. But, because so many of us have found relief without them, we want to share our stories. Perhaps we’re going about it the wrong way. I hope that makes you feel a little better about it. :)

]]> By: pollyannapenguin http://pollyannapenguin.wordpress.com/2009/02/01/thank-goodness-for-my-ipod-yes-this-is-an-ra-related-post/#comment-100 Tue, 03 Feb 2009 20:45:06 +0000 http://pollyannapenguin.wordpress.com/2009/02/01/thank-goodness-for-my-ipod-yes-this-is-an-ra-related-post/#comment-100 Hi Natalie,

Eyes are rolling … how did you know? and yet I suspect that underneath the miracle claims and such like he’s talking a lot of sense … I just get REALLY put off by the whole ‘all current medicine is evil and all alternative medicine is great’ hype – life’s a lot more complicated than that.

Erm … I’m being unnecessarily judgmental, aren’t I? Sorry, it’s been a REALLY long week and it’s only Tuesday!

]]> By: thetruthaboutjra http://pollyannapenguin.wordpress.com/2009/02/01/thank-goodness-for-my-ipod-yes-this-is-an-ra-related-post/#comment-99 Tue, 03 Feb 2009 03:35:53 +0000 http://pollyannapenguin.wordpress.com/2009/02/01/thank-goodness-for-my-ipod-yes-this-is-an-ra-related-post/#comment-99 pp-
I do the same thing! over the summer my wrist hurt me so badly that it would bring me to tears and i couldn’t sleep. I listened to my ipod and sung out loud to it..it totally worked to keep my mind off the pain!

you’re probably going to roll your eyes at this, but…as long as your downloading podcasts…I have to recommend this guy: Jon barron. he podcasts about health and everything that I’ve been reading about…I just found him today and if i ruled the world everyone would have to listen to it haha. I’m a health freak. anyway, try it out if you need some more distractions. his website is jonbarron.org. on the left of the page you can subscribe to his podcast…if you feel like it :) if you get anything from it you’ll at least learn something new!
-natalie

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