Healclick.com – a new way of looking at your health

January 14, 2014 at 5:41 pm | Posted in arthrits, rheumatoid arthritis, fibromyalgia, joint pai, Me, rheumatoid arthritis (RA) | 5 Comments
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There’s a new website launching at 8 am Pacific Time (whatever that is!) and it sounds like (and in fact looks like, as I’ve been playing in the beta sandbox) an interesting idea.

It’s completely free to join and there will be no ads. (How’s it funded? Read on!) It’s designed by patients for patients and the idea it’s kind of social media for patients with a twist. You fill in all your details including your health issues, medications etc. and you can discuss topics, write about anything you want that’s treatment/patient etc. related and read what other people are saying. The twist is that you can look at other registered people (you can find me on there as Pollyanna Penguin) and the site will give you a percentage match to other people on the site, based on your conditions, treatments etc.

So OK, how’s it funded? Well anonymised and grouped data will be sold to research organisations – both pharma and universities. There’s some info on how it will be anonymised  http://www.hhs.gov/ocr/privacy/hipaa/understanding/coveredentities/De-identification/guidance.html This may or may not be something you feel comfortable with – it sounds fine to me (but then I’m using Pollyanna Penguin on there!) but I’m sure some people wouldn’t be happy with it; well that’s entirely your decision – no pressure! :-)

If you want to give it a go though, here’s where to find it: www.HealClick.com, or if you’d like a little more info, have a look here: www.indiegogo.com/projects/revolutionizing-patient-sharing or here:

 http://blog.healclick.com/uncategorized/we-got-answers

or Wren over at rheumablog also has a post about it – she’s joined too.

I’ve already had someone link to me – presumably we’re a match – or perhaps it’s someone that reads the blog, or maybe both. Frustratingly I can’t find out right now as I’ve stupidly lost my password! Because it’s still in beta, someone’s got to sort this out for me manually, but I’m sure once it’s live it’ll be as easy as any other site when you lose your password (which I blush to admit I do all the time!) Anyway, I’m excited to find out and I’ll be watching the site with interest to see how it develops. See you there?

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5 Comments »

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  1. Interesting site…I signed up under the username fitkit…look me up if you get the chance…we’ll see how this goes, looks like a lot of folks are already signed up but not seeing any matches for people yet.

  2. Hello ‘fitkit’ – I have favourited you on the site (I think) … still working my way around it. Apparently the matching at the moment will only happen once a night – maybe in real time later. That’s the key thing about the site so I hope they get it working fully soon! That’s one GORGEOUS cat in the picture – yours? We have one slightly similar.

  3. Ha…your “favoriting” went through…yes, that’s my little Spooky girl in the picture…she’s almost 8 years old and such a baby…I just love her to pieces.

  4. Thank you!

    The matching happens on a nightly basis instead of right away; otherwise the site slows down massively with our current resources. But making it faster and more accurate is our biggest priority going forward: http://bit.ly/1donrdK

  5. She’s adorable! Our ‘Enormous Cat’ as featured here on the blog is the same colour … but a little older at around 15! He still thinks he’s a kitten though.


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