Tags: arthritis, consultant, diagnosis, doctor, hospital, NHS, nurse, nurse practitioner, Rheumatoid arthritis, rheumatoid arthritis (RA), rheumatology
Something’s going on. Call me a nasty, suspicious, cynical penguin, but this just isn’t normal. I went for my routine rheumatology check – you know, the one where they say, ‘Oh go away – we’re not interested in you. Call those symptoms? Ha! I see people in a much worse state than you every day!’ (As though that has anything to do with the price of fish.) But this time it was different … It started off with the usual intro as though we’d never met before, but this time, as I looked at her blankly, she actually said, ‘Oh – we’ve met before, haven’t we?’ Then she looked at the notes – yes, the ones she’d taken in with her five minutes before she called me in, but obviously hadn’t read, and went, ‘Oh yes, I saw you last time.’
OK, not an auspicious start, but nevertheless, better than expected. But here’s where it gets weird. She asked how I was. I said fine. She said ‘scale of 1 to 10’ and I said ‘1’. She looked blank. ‘Well, is there anything you want to ask me?’
‘No, not really.’
‘Well … is there anything I can do for you?’
‘You can say, “You’re fine. Go away and come back next year,” and then I’ll do that.’
‘Yes, but … I mean surely … ‘
What’s going on here – you usually can’t wait to see the back of me.
‘I know – you haven’t had any x-rays for ages. We ought to check there’s nothing going on below the surface that we’re unaware of.’
Really – I was diagnosed in 2007. In 2009 I mentioned x-rays and how the guidance said they should be done a year afterwards and then every so many years – but it was poo-pooed. ‘No, you’re fine. We see worse people …’ etc.
I haven’t had any x-rays done since and it hasn’t worried anyone.
‘Good heavens, do you know, you haven’t had any x-rays done since you were diagnosed!’
‘Yes, I know.’
‘Well I really think you should have them done. I know it’s inconvenient coming in specially and I know they’re a bit of a pain, but I really think …’
‘Fine. I’m happy to come in.’
And then, to make matters even more Alice-down- a-rabbit-hole, she said they could arrange the x-rays to fit in with another appointment I had, to save on trips in. Hang on – when has the hospital ever put itself out to help its out-patients? This is new – but I’m not complaining.
Of course, in the next couple of days the universe got itself back on track. The appointment for x-rays arrived, on a completely different day to my other appointment and at an impossible time two days from when the letter arrived.
Ah – that’s more like the NHS I know and love, I thought. But wait … I emailed them (yes, they’re now so far into the modern age you can email them, woohoo) and said, ‘Sorry, can’t make that, but I will be in the hospital on this date for this appointment. Can you fit round it?’ And wha’-do-ya-know – they actually did!
So … did it work? Did they fit in? Did I run late for the next appointment? For answers to all these questions and more, you’ll have to wait for the next exciting episode of … Polly’s Adventures in NHS Wonderland.
Tags: arthritis, autoimmune arthritis, diagnosis, doctor, fatigue, GP, IAAM, joint pain, knee, methotrexate, MTX, NRAS, nurse, occupational therapist, OT, pain, physical therapy, physio, R.A., RA, rhematoid arthritis, rheumatoid, Rheumatoid arthritis, rheumatoid arthritis (RA), rheumatology, stiffness, tiredness
One of the many things people with rheumatoid arthritis battle with is the many misconceptions around the disease, the most ‘popular’ of which is that ‘arthritis is wear and tear on your joints’. One of the reasons this misconception is so hard to grapple with is that it’s true – sometimes. There are many, many kinds of arthritis – all arthritis means is joint inflammation. It comes from the Greek arthron (arthretes or similar depending on which dictionary you look in!) for joint, and –itis, a suffix used to indicate inflation, so it means inflamed joint.
What the word arthritis doesn’t tell you is why the joint is inflamed, and thereby hangs a tale! It gets even more confusing because arthritis tends to be split into the many kinds of ‘inflammatory arthritis’ on the one side, and osteoarthritis, which (is ‘wear and tear’ though by no means always fair!) on the joints, on the other. And yet arthritis means inflammatory, and of course osteoarthritis can cause some inflammation too, so it makes it even harder to explain the differences simply.
Perhaps the most important thing is that however unpleasant, debilitating and downright painful osteoarthritis is, it affects the joints and only the joints. Rheumatoid arthritis and the other related autoimmune diseases are just that – diseases, aka illnesses, and can affect considerably more than your joints.
The difference in a nutshell
Osteoarthritis (also known as wear-and-tear arthritis or degenerative joint disease) is caused by the cartilage between the bones in a joint wearing away or breaking down. The cartilage basically sits between the bones of a joint and stop them rubbing together. When they do rub together because the cartilage is worn away it can cause a great deal of pain and debilitation. It often (though by no means always) occurs in one joint, and may be a joint that has been used a great deal e.g. a blacksmith getting osteoarthritis in an arm joint.
Rheumatoid arthritis on the other hand (and that’s the one I’m going to talk about because it’s the one I know, as I live with it every day) is a chronic, progressive, inflammatory arthritis. Chronic means long-term, it’s there and, in this case, it’s not going to go away. Progressive means without treatment it’s likely to get worse. It is an autoimmune disease, whereby, for reasons not yet understood (though theories abound) the body’s immune system attacks some of the body’s own tissue instead of (or as well as) invading bacteria etc. In rheumatoid arthritis (RA) it is the synovium (joint lining) that is the main target of attack, but many other organs can be affected too.
Spot the difference
Even doctors find this one tricky, which is why RA can sometimes take a very long time to diagnose. Another problem is that RA seems to crop up with infinite variety; just about every patient ‘presents’ differently when they go to see their doctor. Some things to look out for though are:
RA will almost always occur in more than one joint at the same time
- RA will often involve obvious swelling around the joints
- RA will often involve obvious redness around the joints
- People with RA will often find joints extremely stiff first thing in the morning, with this stiffness wearing away gradually over a period of an hour or more
- People with RA will often feel unwell, with a kind of general ‘don’t feel good’ feeling including tiredness, headaches, lethargy and fatigue
- RA apparently often occurs ‘symmetrically’ – i.e. if you have it one hand, it will also occur in the other. If you have it one knee, it will crop up in the other one too.
- RA frequently affects the small joints – those in the hands and feet, whereas osteoarthritis often affects the larger joints.
But see all those ‘often’s and ‘almost’s? That’s why it’s so hard to diagnose! The worst of my RA, for instance, has been in my knees and shoulders, so I don’t fit the ‘small joints’ pattern, although it does all affect hands and feet.
The good news as told by Pollyanna Penguin
If you have osteoarthritis, short of joint replacement and painkillers there’s probably not a lot you can do about it (although maybe glucosamine helps in some way – the jury is out!) If you have rheumatoid arthritis there are treatments available. They are many and varied, and some work for some people and others work for others and you’re really incredibly unlucky they won’t work for you ; if you’re new to this whole RA thing, don’t panic when you read the blogs all around the RA community. There are hundreds of people out there whose RA is under really good control through drugs and/or other treatments, and as a consequence they consider they have better things to do than blog about arthritis! So those of us who blog tend to be the unlucky ones – although of course there are exceptions. I’m on the fence here – I’m a lucky one – things are pretty much under control, and I only blog once in a while when I have something to say or those nice folks over at IAAM ask me to!
There are many medical treatments out there, and there are new ones coming out quite often too. The new ones, largely ‘biologics’ tend to be very expensive at the moment so your doctor will probably start you off on some of the older ones, which are ‘cheap as chips’ as one of the rheumatology nurses at my hospital put it. I’m on that old stalwart methotrexate. It’s the most commonly used drug I think, it’s certainly ‘cheap as chips’ these days, and for me it really works. Some people have nasty side-effects from it though, and for others it just doesn’t do the job. If that’s the case then it can be tried in combination with other things, or you might be moved on to one of the spangly new biologics.
You might, of course, opt to go for a non-medical treatment. My personal belief is that it’s a good idea to get things under control with medicine and then use other things such as physiotherapy (physical therapy is the US translation!), occupational therapy, acupuncture if you think it helps, dietary things etc. added on top, because I believe that this is a progressive disease and that these various medications, although they won’t flat out cure you, can and often will stop the progression, which is hugely important. Other people disagree and use complementary therapies, which seem to help them. It’s your choice – but please, just do your research before you decide!
So, it’s not all doom and gloom – anyone with RA (or osteo for that matter) would rather not have it, but there are things that can be done, and there is also support out there, from NRAS and Arthritis Care in the UK, the Arthritis Foundation (and others I’m sure) in the US and UK, and now from IAAM, the International Autoimmune Arthritis Movement. IAAM are doing a lot to increase people’s awareness and understanding of what autoimmune arthritis (RA being one kind of that) is, and I’m proud to be a member and a ‘blog leader’ for them. They have established World Autoimmune Arthritis Day (WAAD), to be held annually on May 20th, online and during all time zones, making it a 47-hour online event! This Virtual Convention will unite patients, supporters and nonprofits from around the globe, inviting them to participate in both live and on-demand presentations, scheduled live chat sessions, surveys, live Call to Action posts and access to an online library of downloadable resources that can help people with autoimmune arthritis and their supporters in managing their diseases. WAAD is registered on 16 health calendars internationally and has already received nonprofit support from over a dozen organizations, including the American College of Rheumatology, the Spondylitis Association of America, Arthritis New Zealand, the International Still’s Disease Foundation and Lupus UK. As the official Host of this historic event, IAAM invites YOU to be a part of it too. Best of all? It’s FREE to register!
World Autoimmune Arthritis Day (WAAD) website link- www.worldautoimmunearthritisday.org
WAAD registration link- http://events.r20.constantcontact.com/register/event?llr=0&oeidk=a07e5n7i1aq5f98d0e9
And what’s more, it’s IAAM’s first birthday on May 7th. Slightly in advance Happy Birthday to you, Happy Birthday to you, Happy Birthday dear IA(AAAA)AM*, happy birthday to you.
* Can’t sing it properly without some extra As!
Tags: aches, arthritis, beans, diagnosis, doctor, exercise, fibromyalgia, joint pain, physical therapy, physio, physiotherapy, R.A., RA, rhematoid arthritis, rheumatoid, Rheumatoid arthritis, rheumatoid arthritis (RA), rheumatology, shoulder pain
If I had to come up with a list of the top ten things I never thought I’d be saying, that’s got to be up there among them!
I had a physio appointment yesterday for my dodgy shoulder – the one the doctor said was RA and would probably need a joint injection. Well … according to the physio it isn’t and it won’t … and I think she’s right. She thinks it’s likely to be inflammation relating to a previous episode of joint inflammation which caused the joint capsule to swell, so that the muscles around the glenohumeral joint, the ‘rotator cuff’, were pushed about a bit and got inflamed as well. The joint problem seems to have died down, leaving the rotator cuff problem zinging away like a good’n, unfortunately.
Apparently one in three people over the age of forty have a rotator cuff problem anyway, nothing to do with RA, so it might not even be linked, but since I’ve had no injury etc. to exacerbate it, it probably is.
Anyhow, this physio seems to have had prior training as a torturer, although she assured me that she started as a physio straight out of uni last year, but I’ve got to admit that with her heavy and darned painful massage, ultrasound and various exercises, the shoulder is a whole lot better already today, although she says it will probably take three months to heal completely … and that’s if I’m a good penguin and keep remembering to put my nose on my elbow!
Yes, that’s one of the bizarre exercises I have to do to stretch the muscles. Stand feet about a foot from a wall, rest my forearm on the wall in front of me with my upper arm at right-angles to the shoulder joint and then … rest my nose on my elbow, for about three minutes a day, but not necessarily all at the same time. It really does stretch those muscles! Looks extremely odd though. I can hardly wait to do it in the office and entertain the junior penguins! (Or perhaps I’ll just slink off to the loo and do it there!)
The other main exercise involves lying on the bed with a can of beans and doing a kind of weight-lifting thing. At least having a can of beans by the bed makes it easy it to remember to do the exercise!
… it’s that it doesn’t obey the rules!
I’ve always been a very law-abiding citizen, a positive goody-goody in my youth, and I just don’t think that’s FAIR!
I’m not having a flare, I’m not in a great deal of pain, none of my small joints (you know, the one’s that RA affects when it obeys the rules) are causing me an problem at all. Hurrah. Believe me, I’m not complaining about that. Even my acromoclavicular joint, that little one in the shoulder/neck area that’s given me a lot of gyp in the past, is fine.
No, this time the problem is the wacking great big joint – the ‘ball and socket’ where the upper arm bone (humerous) fits into the shoulder – the glenohumeral joint apparently. Good job I have a love of words, because there’s very little else to love about my left glenohumeral joint right now!
As I said, I’m not in a great deal of pain – in fact no pain most of the time. However, something’s going on in that joint which is causing a nerve to get trapped whenever I try to a) lift the arm past horizontal height sideways b) lift the arm past what I can only think of, given that I’m reading a book about Germany in World War II at the moment, as Nazi salute height c) lift something heavy or d) sleep on that side. And when it gets trapped, IT HURTS! Fortunately it doesn’t hurt for very long, unlike that typical toothachy grinding pain of RA, but it does hurt… a lot!
I’ve had it for months – I couldn’t be bothered to go and see the doc. After all, it only hurt if I did things that I didn’t really have to do, and I thought it would just get better.
It got worse.
I also thought that it wasn’t RA. It might not be … but I saw the doc today and she thinks it probably is.
On the bright side, she’s referred me to physio. On the not so bright side it could take weeks, because I’m at work. If I was off work because of it, I could get an urgent appointment so I could get back to work.
If I was off work because of it, I would have no money coming in… I’ll wait.
Also on the not so bright side, she’s dubious about the physios being able to do anything about it. If they can’t, I’ll probably have to have an investigatory ultrasound (no worries) and an injection (nerve or joint related I’m not quite sure – decided I’d rather not ask …) … big worries! However, as I’m immuno-suppressed she’s not keen to go down the injection path because of risk of infection. I assured her that as I’m a wimp I’m also not keen to down the injection path, because of risk of pain!
Just have to sit back and wait for the physiotherapy appointment now, and hope it doesn’t take so long that I AM off work with the problem by the time I get the appointment!
Tags: aches, arthritis, doctor, fatigue, flare, flare-up, GP, joint pain, NHS, RA, rhematoid arthritis, rheumatology, sleep, stress, tiredness, work
No … probably not!
It’s just possible, maybe, perhaps, that I’ve sliiiiiiiightly overdone it this week! The plan for this week was that on top of work (quite busy) I would also have: the dreaded surgery Patient Panel on Monday – bound to be acrimonious as they’re introducing a telephone triaging system which has gone done like a lead balloon with most patients; my second Spanish lesson on Wednesday (a drive all the way in tew the ci’ee (aka Norwich); on Thursday morning a reunion meeting for a course I attended last year (again in the ci’ee); an Embroiderers Guild talk to attend on Friday night (in the ci’ee); a botanical drawing course all day Saturday (an hour’s drive away); and finally taking mum out for a mother’s day meal (in the ci’ee again) today.
I had also committed to growing a sour-dough started for ‘Herman the German Friendship Cake’, with the extra starter to be passed on to three friends on Thursday and the cake baked on Friday.
What I hadn’t considered when taking all this on was the possibility that BOTH the ‘junior penguins’ might be off sick (there’s a dreadful sinusitis bug raging around our wee town at the moment!) and that I’d therefore be incredibly stressed at work, trying to meet deadlines and earn money for three! Hubby suggested I needed a notice above my desk: ‘Penguin: Working to earn your sick-pay.’
Something had to give – and unfortunately it was the reunion, which I was really looking forward to. I obviously couldn’t have the time off work with the other two both sick! I went to the patient panel – and walked out after 1.5 hours, having spent the first 45 minutes wasting time discussing stuff we’ve been discussing since it started in 2008. It was just starting to get acrimonious when I said sorry, I had to go, but I’d made my points by then.
I was already tired by Wednesday but determined not to miss the Spanish lesson, as it was only the second one, even though my brain was pretty fogged by the end of the hour and I’m not sure much went in! I must remember to say no to the generous offer of Spanish-strength coffee when I arrive; I didn’t get much sleep that night due to caffeine buzz!
Nevertheless, the work got done, the cake got baked (and delicious), the talk got went to (see – told you by brain’s fugged – can’t do grammar proper at the moment) and the plants got drawn, but I have a nasty feeling I’m heading for a flare – or at least a fizzle! Well no, let’s be honest, I’m HAVING the fizzle and hoping it’s going to be a damp squib and not a flare!
At least mum’s driving us into the ci’ee today for our Mother’s Day meal so all I have to do is eat and pay. Think I can manage that!
Tags: aches, filing, RA, Rheumatoid arthritis, transportation, Wales
I have just got back from a short trip to Wales – or a long trip, depending on how you look at it. I was there for about 2.5 days – but I also spent 16 hours travelling! I don’t know why sitting on your butt on a train is tiring, but it is! Fortunately I was fine RA-wise while I was there, even though I was visiting a friend with a dog and a bunch of mad cats that periodically had to be chucked off me, the bed or sundry bits of furniture, and even though we spent most of the 2.5 days filing.
I am NOT good at filing. First we cleared out a load of old papers from a filing cabinet, and then we cleared out a load of papers from boxes and put the ones she needed to keep IN the filing cabinet. The trouble is that neither of us are any good at filing – firstly thinking of suitable headings for things – like car insurance: do you file it under insurance, car insurance, motor insurance, auto insurance? ‘Well, where would you look for it when you went to find it?’ says I. ‘Dunno,’ says she … ‘I’m putting under car insurance,’ says I with a sinking feeling that EVERY time she’s looking for something in future I’m going to get a phone-call asking what we filed it under.
Secondly the actual physical act of filing. It’s a lot of hand movement for one thing, and my hands are rather sore this morning. Also, you know those cabinets with hanging files that you put papers in? Well I KEPT putting the darned papers in BETWEEN the hanging files so they ended up on the bottom of the drawer instead of filed. I’d only realise hours later when I went to file another car insurance document only to find that the car insurance file was empty. ‘I know I filed some of these earlier … ah … there they are, on the bottom of the drawer …’ It was biiiiig, deep drawer in quite a tall cabinet. I think this may be why my shoulders are also aching this morning.
Still, even with all that going on I was fine … until I got home. I think it’s a question of when you stop you realise how tired you are. While I was there I did not stop! I have now ground to a rather achy halt!
Happy Birthday to me, Happy Birthday Polly Penguin, Happy Birthday toooo me… and a very jolly birthday it’s been in spite of the cold, the snow, the lack of water supply and the intermittently painful wrist.
On the bright side, the day started well with coffee in bed and some lovely pressies, including a complete surprise pair of lovely earnings from hubby (as well as the book I’d asked for, which is splendid), followed by a leisurely trip to Norwich to visit the new Art Nouveau exhibition at the Sainsbury Centre in Norwich. Most definitely worth a visit, especially as I’m planning to enter an Art Nouveau themed embroidery competition. Their new cafe (very nice indeed apart from dodgy milk jugs) had just opened too so we were able to get a nice coffee there. (I’ve over-done the coffee a bit today and won’t be sleeping tonight I fear!)
We then went into the city centre seeking lunch and decided to try somewhere I must have walked past a hundred times – and it was FAB! (More coffee, of course!) It’s called ‘The Library’ and details are here for anyone passing through Norwich. We will definitely be going back!
Then dragged poor hubby round a couple of shops ’cause it was my birthday and he couldn’t say no … and that’s where things started to go fractionally down hill. Coming out of one my right wrist suddenly twinged, and it’s been twinging every since. Now a twinge sounds pretty mild but I don’t know how else to describe it – it hurts like blazes for a second or less, so painful I sometimes cry out involuntarily, stops and starts a few times, and then is alright for several minutes. There’s no redness of swelling and I have full movement so I don’t know what the heck’s going on! Any ideas anyone? I have it wrapped in the wheat-pack bro and SIL got me for Christmas, which seems to help a bit.
Also when we got home and went to make tea like a true Brit, I discovered there was no water coming out of the cold tap in the kitchen! Having got poor hubby emptying out the under-sink cupboard, unscrewing the tap, shoving wire hangers down the pipes, checking the cold water tank in the loft etc. I finally thought, ‘Perhaps I should check with Anglian Water to see if there’s a general problem …’; at roughly the same time, hubby thought, ‘Perhaps I should check with the neighbours to see if they have a problem.’ Again at roughly the same time I established there was and he established they did … currently Anglian Water are hoping it will be fixed by 8:30 … let’s hope so. Fortunately as we’ve been out all day we have a pretty full water tank!
All in all though, in spite of minor tribulations, a damn fine birthday. Off to read one of the super books I got. Probably the plant evolution one and not the crochet one, as I can’t crochet too easily with one arm wrapped in a wheat pack …
I recently became the proud owner of a mobile thermal therapy knee support thingy. I’ve been finding recently that the cold really triggers the pain in my left knee, and recently I’ve had plenty of cold to test out this theory with! The biggest problem is driving to and from work, as the car doesn’t have time to heat up so it’s a cooooooooold ten minutes or so. I have a couple of lovely thermal wheat pack thingies that you heat up in the microwave, but wasn’t too sure how safe they’d be balanced on my knee in the car while driving … so, before I got all your excellent suggestions about crocheted mini-wheat packs that I could strap on etc., hubby bought me a ‘mobile thermal therapy’ thing that has a gel pack inside that you microwave (or freeze depending on what’s required) and slip into the strap-on thing and wear on the knee.
The gel pack certainly works fine. The strap-on thing also works fine as far as keeping it on the knee in the car goes.
When it comes to ‘mobile’ though, I’m not so sure! I was going out to meet a friend for a coffee this afternoon and the knee was really playing up so while at work I thought I’d heat it up and strap it on.
I think part of the problem was that I was wearing jeans. Every time I tried to strap the darned thing on it would either slip or my jeans would start to ride up. We ended up with Junior Penguin 2 sitting on the floor holding down my trousers while I strapped on the support! Heaven knows what any passers by would have thought, had they chosen that moment to look in the window.
Anyhow, it stayed put right from the door of my office to the front door of the building … and then started to slip slightly. by the time I’d reached my car it had slipped a LOT so I opened up the car, sat down, adjusted it and then set off again (on foot) to meet my friend. The crossing was about 50 yards away … before I got there it was slipping again.
Did I mention that this thing is BULKY too? I felt a complete clown hobbling along with this thing slipsliding away … so I took it off, tucked it under my arm, and hobbled to the coffee shop with a frozen knee.
On the bright side, when I got there, I was able to strap it on for our hour’s chat and warm the knee up again!
I think it works better with ‘proper’ trousers as opposed to jeans, so will try that. Otherwise, back to the crochet and wheat-pack drawing board!
Tags: aches, arthritis, exercise, fatigue, joint pain, knee, pain, R.A., RA, rhematoid arthritis, rheumatoid, Rheumatoid arthritis, rheumatoid arthritis (RA), rheumatology, sleep, stiffness, tiredness, work
I’ve spent the last six months on a very useful course run by our local university business school, on helping small businesses to grow. It’s been great and I’ve met some lovely people along the way. Tonight we were asked to do a ‘showcase’ where each of the businesses on the course had a little exhibition stand and said a few words into a mike and generally chatted to invited guests, university bigwigs, previous course attendees and each other.
Unfortunately I was dreading it because I knew the admin was a mess. Fortunately although the admin was a mess, a handful of very brave people had stepped in at the last minute to salvage what they could, and they did a marvellous job. However, as suspected, when we arrived to set up our exhibit, rather than the floor-plan with everyone’s tables labelled, display boards there and of course, vital for me, and definitely requested in advance, CHAIRS, there was organised chaos.
Fortunately the wonderful people who’d stepped in at the last minute were on hand to sort everything out, and equally fortunately we’d brought some folding chairs with us! I did feel sorry for some of the others though, as there were no chairs available at all.
Having said that, once the evening got going I hardly had a chance to sit down, as we were all buzzing about and chatting to each other. There was a really good atmosphere and, in spite of not looking forward to it, we had FUN. On the other hand, I’m absolutely wiped out, completely shattered, totally exhausted … and my left knee is giving me gyp from so much standing around.
Entirely my own fault of course. I had a chair, I have the capability to sit down in it, but I suppose it was partly not wanting to miss out on anything and partly the old not wanting to admit I had a problem, leading to one of those conversations. You know the ones: ‘My auntie’s got arthritis too. It’s all cleared up though since she started rubbing in bindweed’ or ‘all you have to do to get rid of it is lose some weight.’* What I should have done was go and have a chat with the yoga lady and get her to give me some stretching exercises – but every time I looked in her direction (at least right up until the last few minutes) she was deep in conversation.
Oh well, working from home tomorrow so I think that might start with a bit of a lie-in!
* Not that I’m denying that would help!
As you’ll know if you’ve been reading this blog, or many other RA or inflammatory disease blogs out there, for a while, IAAM is the International Autoimmune Arthritis Movement – and it aims to bring help, awareness and understanding to people with autoimmune diseases across the world.
They have a number of interesting and useful projects in the pipeline, and like all charities, they need financial help in getting them going.
Find A Cure Panel (FACP) specialises in patient research for serious diseases including RA – and NEXT WEEK, FACP has an anonymous and confidential online survey for those with RA who are on medication. If you complete the survey, FACP will donate $25 to IAAM!
Unfortunately I can’t participate as it’s for US patients only – but I know a lot of my readers are in the US, so please do take the time to fill this survey in if you possibly can. It’s for a worthy cause!
If you’d like to participate, or see if you qualify, please email firstname.lastname@example.org AND WRITE: FACP RA Survey/IAAM IN THE SUBJECT LINE. Don’t forget to add IAAM in that email so that they get the funding!