The latest on the blood test fiasco

January 29, 2014 at 3:12 pm | Posted in Me, rheumatoid arthritis (RA) | 8 Comments
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Here’s the thing. You may remember that I said back in November that the hospital were happy for us to have 3-monthly blood-tests for methotrexate? Well it turns out that I’d misunderstood. It appears that the hospital are happy for us to have monthly blood tests but only see the surgery rheumy nurse three-monthly. They are NOT happy to have methotrexate patients checked only three-monthly.

Well that would mean attending the walk-in blood-test appointments, and if you reading my most recent post on this you’ll know they’re a joke – or they would be a joke if they weren’t a tragedy. Today I attended my three-monthly test and had a wee chat to my lovely rheumy nurse about the monthly tests.

They seem to have put the blood tests on a Wednesday now, although my last notification was for a Thursday – perhaps it’s both now. If so, it’s not helping. The nurse freely admitted that the system was a disaster and I witnessed the rugby scrum as the board with the little numbers stuck to it was brought out by the receptionist.

Walking-sticks flying, old people beat others out of the way as they charged toward the board, knocking down the poor receptionist who was trying to attach it the wall. An ambulance had to be called to  cart off the trampled people when the scrum was over.

OK, I exaggerated just a tad there, but not as much as you’d think!

In spite of the fact that there’s a notice up saying ‘Unless you have a really important personal reason or work, please don’t come in before 9:30 for the blood test’ I don’t think one person in the scrum was under 80. Now the thing is, from experience they all know that there’s going to be a 1.5-2 hour wait, and they have lives too – why on earth should they wait 2 hours just because they don’t have work – so I don’t blame anyone, of any age for coming in at 8:15 plus rather than 9:30 – but the whole thing is just a failure … and surprise surprise, staff are going off sick with stress – so would I be, I think, under the circumstances!

The only light at the end of the tunnel maybe, maybe, maybe, the hospital will see that people are not ‘complying’ with their monthly tests and then tell the surgery they have to reinstate tests with the rheumy nurse each month – I don’t suppose that will happen though. They’ll probably just tell the patients off instead.

It’s not the lack of rheumy nurse I object to – it’s the lack of an appointment time , and a sensible one at that, that doesn’t assume each patient can be dealt with in 2.5 seconds or whatever their crazy trial showed!

Three-monthly blood tests

November 19, 2013 at 9:56 pm | Posted in arthrits, rheumatoid arthritis, fibromyalgia, joint pai, Me, rheumatoid arthritis (RA) | 7 Comments
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The hospital has decreed that patients on methotrexate for RA no longer need monthly blood tests – they will now be three-monthly instead. Now I don’t have a problem with having my blood tests every three months – as yet I’ve never had a single blip in my tests and if the hospital say three-monthly is safe I suppose I have to believe them and not just assume this is purely a cynical money-saving exercise: ‘Hey, what’s the odd life lost compared to a few thousand pounds saved, eh? Let’s do it! Right lads, down the pub …’

What I do have a problem with is the fact that they can’t book tests three months in advance, and yet we’ve been told to contact the rheumy nurse to make the next appointment. There IS NO WAY to contact her except by making an appointment to see her … a bit of a circular argument! My sensible and lovely nurse realised this straight away and in fact pointed it out to me with a comment on the lines of ‘I’ve told them ALL individually in reception, so don’t take any nonsense if they tell you that you should have booked it through me!’

OK, so that’s hopefully sorted out even before it becomes a problem, but how crazy that we can’t just book the tests when we see the nurse!

The surgery have also arranged monthly ‘walk-in clinic’ tests for the months we don’t see the rheumy nurse … but that’s a whole nuther story … a post to come in a day or so.

Bloodless penguin – and more surgery hassles

September 24, 2013 at 9:57 pm | Posted in rheumatoid arthritis (RA) | 3 Comments
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I mentioned to the facilities manager as I left work this morning that I was off for a blood test. When I saw him later he asked, ‘So did they manage to confirm you had blood then?’ Well – actually it was a bit of a struggle! The first attempt to prove I had blood was a dismal failure – in went the needle, out came … nothing. The rhuemy nurse waggled the needle about – nothing happened … except that it hurt … she waggled it about some more … OUCH! We mutually agreed that perhaps trying another spot would be better. It wasn’t. Hmm … I’d walked in rapidly and everything, the blood should have been flowing … but perhaps the problem was that it had all rushed to my head a moment before! 

‘Why would it do that?’ I hear you cry. Because she’d just told me that the system of monthly blood tests was changing – in fact it was going. The new guidelines from the hospital are that we only need three-monthly blood tests done by the rheumy nurse. Well OK … that’s fine by me… but here’s the rub. 

At the moment I go in for my blood test, have a chat about my arthritis and general health, query anything that’s bothering me rhuemy-wise (usually not a lot, ’cause I’m lucky most of the time!) and book the next appointment. Now the appointment times are being reduced, so I will only see her every three months and have less time for a chat about how things are going because she will have less time per patient, even though she’s not seen us for three months. On top of that – she can no longer book the next appointment – because, mind-bogglingly, ‘the system’ won’t allow booking three months ahead!

I do wonder how much this has to do with the computer system and how much it has to do with the fact that the further in advance appointments are booked, statistically the more patients are likely to fail to attend! So now, instead of a simple month-by-month process of blood tests and booking, I have to remember to do an extra thing – phone about three weeks before my next test is due and book it.

Well, that’s not so bad – after all it’s only three-monthly, isn’t it? I’m still spending less time than I was before attending monthly? Not so fast … I am also supposed to attend in the two intervening months for a 2.5 minute appointment with a phlebotomist, who will just have time to say ‘Hi’, take the blood and throw me out again – but on top of that, that won’t even be an appointment but a ‘walk in’. So if they’re not busy (hah, what are the chances of that, especially as I happen to know they’re short staffed) I could get seen straight away, but if they are busy I could be waiting who knows how long.

I told my nurse I would probably simply not bother attending the phlebotomy walk-ins and she said she thought I would not be alone – she’d heard the same from a number of patients! Of course you could say, and quite rightly, that we’re putting our own health at risk doing that and the service is there … but in six years I’ve never had a blood issue, and I do have a full-time job and I don’t have time to sit about for an hour waiting for a blood test, so … we’ll see.

Anyway, back to today’s blood test – when she scraped me off the ceiling and calmed me down and got the blood flowing round the body again, she was finally able to draw blood … which, I hope, will be fine as usual!

Blood test delay – well handled?

July 19, 2013 at 11:47 am | Posted in Me | 2 Comments
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I went into the surgery for my blood test yesterday. I got there in good time and signed in, waited until ten minutes after the appointment was due and went up to the desk to make sure the auto sign-in had worked properly. The receptionist asked who the appointment was with and I didn’t know as it wasn’t my usual nurse, so she found me by my name and assured me I was signed in. I then asked her whether I was the next patient and she said there was one person in front of me.

While not delighted, at least I knew there was a delay so I went and sat down again. Ten minutes later another receptionist called out ‘Is Pollyanna Penguin here?’ and I went up to the desk. It was now 20 minutes past my appointment time. She explained that the nurse I should have been seeing wasn’t in and that another nurse had hoped she could see both sets of patients but was (understandably) running late. She assured me I would be seen if I wanted to wait, but said that otherwise they could re-book for a week’s time, if that was OK.

This is a vast improvement on the way things ran a year or so ago, when the receptionists would just let you sit there all day, and if you went up to ask what was going on they didn’t know! I’ve had a couple of bad experiences like that in the past, so I thought this was a pretty good way of handling it.

The only thing is … when I went up to ask after ten minutes they knew the situation, so I wish someone had thought to tell me then. I know, I know – it’s only another ten minutes, right? But still, I had a busy day yesterday and I could have spent those ten minutes more productively at work than sitting in the doctor’s waiting room playing Angry Birds and feeling like one too!

I see trouble ahead (but then I usually do, don’t I?)

February 3, 2010 at 2:02 pm | Posted in rheumatoid arthritis (RA) | Leave a comment
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Apparently a simple blood test could predict RA years before symptoms appear. Now this could be a great thing – it could mean that in families where RA is known to be prevalent doctors could test those not yet showing symptoms and then keep a special eye on anyone who tests positive, to make sure they’re diagnosed as soon as symptoms start to appear, and treated accordingly. (I say in families where RA is prevalent because I can’t see it becoming a standard test that everyone receives, like TB used to be in this country.)

However, I can also see problems. One problem is that any test can be overly relied upon. I’d put money on it that if they’d tested me I would have come back negative, since my symptoms even now are so mild and my RF test result was so low (although positive … just…) Another problem is one that rears its ugly head almost any time such tests are mentioned … although oddly The Telegraph seem to have missed a trick this time in not mentioning it. It’s not great from a health insurance point of view, is it? Or rather it’s fantastic from a health insurers point of view. They just need to insist anyone they take on is tested first – if you’re positive, ‘We’ll insure you for anything except rheumatoid arthritis …’ Can’t you just see this one coming?

Reframing a rubbish day in positive R.A. terms

October 5, 2009 at 9:32 pm | Posted in rheumatoid arthritis (RA) | 7 Comments
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I have had a bad day … but a good R.A. day!

Here’s how the day’s gone:

1. I had completely forgotten I had a blood test this morning, went sailing off to work, got there, realised that I should be going to the GP, turned around, and the red petrol light came on. Mad dash to fill up with petrol from my spare can before the appointment, because I KNEW that otherwise I’d forget.

Positive R.A. stuff:

  • All results from the previous test were fine – in spite of a recent increase in MTX.
  • The nurse only had to have one go at getting my blood instead of the usual Penguin is a pincushion routine.
  • I got the top of the petrol can and it didn’t hurt!

2. For some reason the red light wouldn’t go out, so I decided to go and buy some petrol. Just as I’d driven PAST work on my way to the petrol station, the petrol needle readjusted and the light went off!! Aargh. Decided to get some petrol anyway and fill up the can. Filled up the can, put some more in the car, went in and joined the queue. There was a man in front of me but I didn’t take much notice of him, as you don’t. When I got to the front the conversation went something like this:

Penguin: Pump 2 please

Assistant: Wha’?

Penguin: Number 2 … please.

Assistant: Huh?

Penguin: Pump … number … 2 … please?

Assistant: Ohmegawd, ohmegawd, ohshite, ohmegawd, stop Mr Pratt … Mr Pratt, Mr Pratt!* oh no he’s gone. Lydia, Lydia, shite, heeeeeelp.

As you may or may not have guessed, the aforementioned Mr Pratt had told her that he was on pump 2 and she hadn’t checked. It was obviously not deliberate as he had an account with them so it can be changed on that, but it caused havoc as far as me paying went, and added about ten minutes to my already delayed start at work.

Positive R.A. stuff:

  • I worked the petrol pump and it didn’t hurt at all! (This is not usual at all for me.)
  • Standing about patiently (and then mildly irritably, and then impatiently) while the assistant sorted herself out didn’t hurt either. My feet were fine.

3. I get to work, tell ‘the boss’ what kind of morning I’ve had and firmly announce that from now on the day is GOING TO GET BETTER! I am determined that this will be so. I am thinking positively. NOTHING ELSE is going to go wrong.

Then, at about 10:33 I realise I’m supposed to be in the cafe down the road meeting a friend for coffee …at 10:30. Aaaaaaaaaaaargh. I tell the lass that works for me (a.k.a. the boss) that if my friend phones, say I’m on my way (she’s a good lass, she could have worked this out for herself, but I’m panicking at this stage), throw my coat on and run (well, jog … well OK, walk fairly fast) down the road.

I’ve only gone a couple of hundred yards when a horrible realisation dawns. I phone the boss and ask her to check my calendar. Sure enough it’s NEXT Monday I’m meeting my friend for coffee. Another few minutes wasted out of a busy day!

Positive R.A. stuff:

  • Racing down the road and my knee didn’t even twinge!

4. Had to take middle-sized cat to the v-e-t this evening. Hubby rang at about 4:30 to say there’s no way he’d be home in time. ‘That’s fine,’ says I, ‘I thought you wouldn’t be.’ I wondered why he was sounding so bothered about it. Then I got home, put MS cat in the box, picked it up and thought, ‘AH! That’s why hubby’s worried.’ I’d forgotten that MSC weights a tonne (approx.)

Positive R.A. stuff:

  • OK … it hurt, I can’t deny it … but it didn’t hurt anything LIKE as much as it has done in the past!

So hurrah – what a great day – what a lot of signs that the MTX might be doing its job properly at last!

* Names have been changed to protect the idiot.

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