Another injection coming up … ?

September 6, 2012 at 5:43 pm | Posted in arthrits, rheumatoid arthritis, fibromyalgia, joint pai, Me | 6 Comments
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Thankfully this one will NOT be in my knee – the one in the knee was possibly the most painful experience of my life so far – but then again it was short-lived and it did cure the problem. This one, though, is going to be in my shoulder.

If you’ve been reading the blog for a while you’ll know I’ve had problems with my shoulder, which turned out to be non-RA related, for a while. I’ve had several physio sessions and a variety of exercises, but although it seemed to be getting better for a while, it suddenly got worse. It’s ‘tendinopathy’ (and that does appear to be the right spelling). It’s the chronic version of the probably more familiar (certainly more familiar to me) tendonitis; in other words it’s chronic inflammation around the tendons, in this case those that attach the rotator cuff muscles to the shoulder bone (but don’t ask me which shoulder bone because my anatomy isn’t great!)

Anyhow, since physio isn’t working, it’s an injection for me. I can’t say I’m looking forward to it, but it’ll be nice to be able to do my bra up myself again!

Thanks to the weird and wonderful workings of the NHS though, the physio has to write to my GP to ask her if she’ll give the injection; I then have to phone my GP in about a week (to give her time to receive the letter) and ask her if she’ll do it, based on the letter. I think she has the right to say no, based on nothing more than the fact that it’s the hospital physios recommending it, and it will be her budget if she does it, so she can send me back to them. I’m not sure about that, but reading between the lines I think that’s how it works.

Since the doctor is a couple of minutes down the road and the physio is a half-hour drive away, and since it hurts the shoulder to drive, I’m hoping common sense might prevail. We shall see. NHS Wonderland Part 4 coming up, I fear!

Thank heaven for little labels

June 6, 2008 at 7:51 pm | Posted in rheumatoid arthritis (RA) | 4 Comments
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I was doing some transcription the other day and a ‘health professional’ made a comment that some patients ‘do like to cling to their little labels’. She was referring to people who say ‘Oh, I’ve got x, so I can’t do y’ without either making the effort or looking for ways around the problem, but it got me to thinking what a relief my ‘little label’ was! Having had months of unexplained pain, a maybe or maybe not blood test result, and no firm conclusions (which is typical of RA because it’s very hard to diagnose with any certainty) I was developing a fear of some doctor turning round and saying, ‘Frankly my dear, it’s all in your head’; not because I thought it was, but because I knew damn well it wasn’t! I was also worried that friends and family would be thinking much the same thing. Now I’ve got my ‘little label’ if I feel so inclined I can turn round to a friend or a colleague or, as today, the vet, and say ‘Sorry I can’t do x, ‘cause I’ve got RA’ and be reasonably certain of a sympathetic reaction … in the latter case a nurse to carry a very heavy cat back to my car for me! ‘Sorry I can’t do x, ‘cause I get this funny unexplained pain in my arm’ is likely to get nothing more than a stony look that says ‘what a bloody hypochondriac’.

Not everyone feels the same. At a local Rheumatoid Arthritis Society meeting recently and was chatting to a very nice lady there who mentioned that she was on a particular treatment for painful muscles, as well as her RA problems. ‘Oh,’ says I, recognising the name of the treatment because a friend of mine has the same stuff for the same condition, ‘is it fibromyalgia?’ ‘Well yes,’ she said, ‘but I don’t like to use that word because then it labels you, doesn’t it?’ I can see her point. Fibromyalgia is the baby of these aches and pains illnesses – a relatively new term, only ‘invented’ in 1976, plenty of doctors still believe ‘it’s all in your head, dear.’ Just because the term wasn’t coined until 1976 doesn’t mean that the illness didn’t exist before then of course. In fact it was probably part of what was known as ‘rheumatism’ as distinct from ‘rheumatoid arthritis’. Or maybe it is a new condition (although the evidence doesn’t seem to point that way). One of the fascinating facts I learnt at the meeting was that apparently rheumatoid arthritis didn’t exist prior to about two hundred years ago.

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