Tags: arthritis, medicine, RA, rhematoid arthritis, rheumatoid, Rheumatoid arthritis, rheumatoid arthritis (RA), rheumatology, steroid
This post on the ‘Rheumatoid Arthritis and Me’ blog just about says everything I’ve been trying to say regarding my feelings about medication! So instead of saying it, I’ll just post a link. Here it is. Enjoy!
Tags: Add new tag, appetite loss, arthritis, hospital, losing weight, methotrexate, NHS, rheumatoid, rheumatoid arthritis (RA), rheumatology, rheumy nurse, rhuematology nurse practitioner, slim, weight loss
But before I tell you why I’m glad I have to tell you about my slightly hysterical Rheumatology Nurse Practitioner (aka rheumy nurse) appointment. Although I had pretty much read everything there is to know about methotrexate for the lay-penguin, the good, the bad and the ugly, and although the consultant had already said I should go on to methotrexate, before I started it I had to make a separate appointment to see the rheumy nurse, so she could ‘give me the methotrexate chat’. And give me the methotrexate chat she did!
To be fair to her she was quite human to start with, apologising for the whole mix-up with the early arthritis clinic etc. (Not that she admitted any liability of course – just apologising ‘on behalf of the whole hospital’.) Then she launched into ‘the chat’. Well, she was so heavily on autopilot that she actually repeated an entire paragraph, word for word, and didn’t even know she’d done it! But then she topped it all with the most patronising comment I’ve ever heard.
She explained that you had to take methotrexate on one day of the week, the whole weekly dose in one fell swoop, and that you then took folic acid a few days latter. The killer comment was, ‘It’s very easy to remember. You take m-m-m-methotrexate on a M-M-M-M-Monday, and f-f-folic acid on a F-F-F-F-Friday.’ I was too gobsmacked to come out with a sharp comment like ‘Blimey – what do you do if you have a patient with a stutter?’ or ‘P-p-patronise me again and I may have to h-h-hit you,’ which was rather a shame.
Anyway, the good news is that I’ve been on the m-m-methotrexate now for about six weeks and although I’m certainly not on top of the world I do, on most days, feel a lot better than I did. And an added bonus is that although it’s not making me feel nauseous (most of the time) it IS putting me off my food – which is great as I’d like to lose about two stone … I’ve lost 9lb in the last three or four weeks, and although I know I have to be careful to eat a balanced diet and I know it’s not healthy or sustainalbe to lose weight TOO fast, I’m still rather chuffed. (I know that appetite loss can be a real problem with methotrexate for slim people, but it won’t be a problem with me for quite some time!)
Tags: arthritis, car, operation, RA, rheumatoid, Rheumatoid arthritis, weather
Things have been jut a tad hectic lately. My mum went in for a planned operation at the beginning of the month. We agreed that I’d stay with her for a night or two when she came out of hospital, and then she should be OK… so she was told.
Well while she was still in hospital I went to visit her and the car broke down … in the car park but not, of course, in a space … I was reversing into a space and it died, completely, no engine, nothing. Well at least mum got a nice long visit while I waited for the RAC! They couldn’t start the car so towed it to our garage, which unfortunately is quite a way from our house, so had to get hubby to pick me up.
Our favourite mechanic fixed it … by tapping a part of it with a spanner! He did warn us that it might go again though … and of course it did. Mum was out of hospital by then, and she lives near where I work so while i was carless for a week (since more than spanner tapping was obviously required!) I was walking from her place in to work, walking back to hers at lunchtime, getting her lunch, then going back in the afternoon, walking back, getting her dinner, doing bits of housework etc. and then falling into bed. Poor hubby had to fend for himself … and fend for the cats too!
I felt completely run ragged and my knee wasn’t too happy about it either!!! Things are getting back to normal now -mum’s very much on the mend, thank goodness, and although I’m still going round (but now with a car!) to do dinners, I’m back home at night (thank goodness!) and she can manage her own lunches. In fact today she walked in to town, her first proper trip out of the house since the op. I’m really pleased for her, as it’s a big psychological step up. She’s being careful not to overdo it though, which is good.
Needless to say really, my arthritis decided to play up something awful over the whole period I was staying at mum’s! It’s now much better. I suppose it’s stress related, although weather may also play a part, as that’s been very up and down, and for much of the time I was away from home it was VERY humid.
Tags: NRAS, RA, rheumatoid, Rheumatoid arthritis
I have just joined the National Rheumatoid Arthritis Society (NRAS) and as well as a pile of interesting bumph and a very informative newsletter all about RA, they sent me a link to their web forum. It’s one of the most active forums I have ever seen (and I’ve seen plenty). It’s packed with informative posts, but reading all about other people’s experiences really put my ‘mild’ diagnosis into perspective. I’m really very grateful that I have only mild symptoms compared to some of these people, but it’s quite inspiring to see how people support each other and soldier on. Having thoroughly depressed myself reading about what might, just might be to come for me in later years, I moved on to the ‘A bit of fun’ section of the forum and laughed until I had tears in my eyes. So thank you NRAS for a thoroughly informative, useful and entertaining forum!