Flare! Out of a clear blue sky …

April 25, 2019 at 1:12 pm | Posted in arthrits, arthrits, rheumatoid arthritis, fibromyalgia, joint pai, joint pai, rheumatoid arthritis, rheumatoid arthritis, rheumatoid arthritis (RA) | Leave a comment
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I’ve been doing well for ages – hence the quietness on the blog – nothing much to say – and suddenly BAM, out of the blue, I woke up yesterday morning with my usual left knee flare. Actually weather-wise it wasn’t such a clear blue sky – we’d had a few beautiful days and yesterday was a bit dull, but nothing dramatic.

I had been having more than the usual twinges in my hands and feet the last couple of weeks, but although it was a bit above the norm it was still only twinges and nothing to write home about. Then yesterday, pooof – VERY painful knee.

I had a very bad night’s sleep last night, partly because my sleep is definitely not normal in that I move a lot while asleep – and every time I moved I woke up going ‘OUCH!’ … or words that that effect, and partly because I was thinking oh, no, there’s nothing else for it, I will have to call the doctor in the morning.

Those of you who’ve read this blog a bit before will be aware that, while appreciate that it’s ‘free’, I’m not a big fan of the way the NHS is run, and our local surgery in particular, and I was literally dreading it. So how did it go? Well, I’m glad you asked. Are you sitting comfortably? Then I’ll begin.

I phoned at 8:30 when the phone lines open and got a message saying ‘You are fourth in the call queue – please hold …’ etc. I was expecting more like ‘You are number 47 in the call queue’ so that was the first of several pleasant surprises!

Then when I got through a receptionist answered I was ready to do battle to actually speak to a doctor – not for instance ‘It’s arthritis? I’ll get you a physio appointment’ etc. Yes, the receptionists triage. It’s quite mad, but there we are. Anyway, I said without thinking that I was having an RA flare and got ‘A what, sorry?’ But that was fair enough. When I said ‘A rheumatoid arthritis flare’ that was obviously something on her crib sheet. ‘I’ll see if anything’s available this morning.’ Bloody well better be, I thought, but held my peace!

‘Oh, I’ll have to get a doctor to ring you’ she said in some surprise. No doubt she heard ‘arthritis’ and initially went down the physio route I’ve bumped into before, but this time they’ve sorted themselves out and can spot the difference between osteo and rheumatoid arthritis. (Not that I’m suggesting a doctor shouldn’t see you for osteo, but they certainly SHOULD for rheumatoid!)

So I waited for the doc to call me back – and he did, within half an hour, and one of the senior partners who I rather like at that. I explained the issue and he said, ‘You’d better come in and we’ll see what we can do. Can you get in for 9:30?’ I said I could and he said ‘I’ll book you in with Dr Smith.*’ I nearly groaned aloud. ‘Is this the same Dr Smith who was a locum a few years ago? I know it’s a common name, but if it’s the same one … I won’t see him!’ (That was some twit who was exceedingly pompous, upset all the patients and nursing staff, ran hours late and told me I’d sprained something when I obviously hadn’t!) He sounded a bit puzzled and said ‘I doubt it – he’s a partner, and he’s very good. He’s not been with us that long.’ I said in that case that was fine then, and toddled in for 9:30.

The checking in system said there were three people in front of me and a 28 minute wait – my heart sank ’cause that reminded me of Dr Smith the first, and I thought oh no, perhaps it is him! It wasn’t …. and in fact the wait was only about 20 minutes which is fine. I always say I don’t mind waiting if it means the doctor is providing enough time for each patient and someone else needs that time … if it we me, I’d want a decent amount of time, thank you!

When I went in I felt instantly (mentally) better – it was VERY OBVIOUSLY a different guy. I won’t go into physical  characteristics but let’s just say Tweedledum versus a stick insect, and quite an age difference too – clearly a different guy. He was very pleasant indeed; he listened to what I had to stay, accepted that I knew my own condition pretty well, examined my knee carefully and asked sensible questions. Good heavens, I thought, have I slipped into a parallel universe?

Then he spoiled it all by saying, ‘I think we’ll try you on some stronger pain killers first.’ My heart sank – nooooooooooo, I remember last time that happened – I had opiods just when the big ‘No opiods’ thing was going on in the States – and they didn’t even TOUCH the pain! But I plucked up the courage (OK, there wasn’t much courage necessary as he was such a nice man), to say ‘I was really hoping for steroids because so far they have ALWAYS worked!’

He smiled and said ‘OK, if that’s what you want to try that’s fine. Come back in five days or so if it hasn’t worked and we’ll investigate further.’ Back into parallel universe territory again. And best of all <insert happy dance emoji here, although only a mental happy dance as my knee isn’t up to a physical one> he PRINTED OFF THE PRESCRIPTION.

‘Eh,’ I hear you cry. ‘So what? What’s that got to do with the price of fish, penguin?’ Well … they had what they (the doctors) thought was an all singing, all dancing IT system at one point. The patients, nurses, receptionists (poor things), pharmacy and nursing staff all saw it for what it was but the doctors took a while … they used to press a magic button on their computers and say, ‘There – it’s automatically gone over to the pharmacy. You can pick it up straight away!’ Only you never could! My longest wait was five hours from time of appointment to getting my steroids, and that was only because I effectively staged a sit-in at the surgery until someone printed off a scrip for me, just before they were due to close!

So anyway, I took my beautiful, green, shiny (OK, not actually shiny) printed slip over to the chemist and waited about five minutes, if that, and came home with my beautiful, white, fairly shiny steroids, of which I have taken the first dose.

I already feel better … but whether that’s the lifting of the stress of thinking ‘I have to phone the surgery’ or the steroids or the fact I had an hour resting with my leg up earlier, I’m not sure!

Here’s hoping it’s all better soon – and I hope, you, dear reader, are keeping well and flare free!

 

* Not his real name – did you guess? It was however a very common name.

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Pride goes before a fall … ouch!

February 22, 2019 at 11:56 am | Posted in arthrits, joint pai, Me, rheumatoid arthritis, rheumatoid arthritis, rheumatoid arthritis (RA) | 6 Comments
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I was just doing some snowdrop lifting (sounds a bit like sheep rustling but it isn’t!) in preparation for an art class tomorrow and I managed some penguin landing instead – crash landing!

Luckily I’m mostly fine – slight twinges in all the diodes down my right side, to misquote Douglas Adams, but certainly nothing broken or torn or, I think, even sprained. I have a horrible feeling I’m going to be stiff as a board tomorrow though- in muscles as well as joints, so an hour’s drive to the art class isn’t ideal … but I do at least have the snowdrops ready to paint when I get there!

It did make me think though … about pride coming before a fall! I should have swallowed my pride and asked hubby (who hates gardening with a passion) to do the digging for me, or at very least have waited until he was in the house before doing it. There I was, outside on a freezing cold morning (the sun had come out and fooled me into thinking it was going to be warmer), and I missed landing on the prongs of the fork (upturned in exactly the way they should NEVER be … but they were) by mere inches! Things could have been a whole lot nastier than they are.

A dear, elderly friend died this week and I’ve been blathering on about how her husband (and possibly also my mother) really ought to have panic buttons that link through to emergency services or something similar, for occasions just such as this, since they’re on their own, and then I go and have a tumble when I’m on my own – and I could have just waited until hubby was home. Silly Penguin!

So while I’m on a misquote roll, (pride comes before a fall is probably a misquote of the biblical ‘Pride goeth before destruction, and a haughty spirit before a fall’), I should also practice what I preach (misquote of ‘… do not do what they do, for they do not practice what they preach,’ from the Gospel of Matthew apparently …

Perhaps I should have made that a new year’s resolution, since I find myself also thinking a lot about (if not generally preaching about) cutting down on plastic use, but fairly dismally failing to do so as yet. ‘Must try harder!’ to accurately quote most of my school reports!

Sick as a parrot …

January 24, 2019 at 1:47 pm | Posted in rheumatoid arthritis (RA) | 6 Comments

… or a dog, or any animal of your choice really … perhaps sick as an emu, or an ostrich? Definitely sick as a penguin!

I did a silly thing last Friday – I dropped my incy-wincy, teeny-weeny folic acid tablet and couldn’t find it. Feeling confident that the cat wouldn’t eat it (they taste foul), I didn’t look for it… but I also didn’t take one as I’d run out! That meant I didn’t take one Sunday either as I didn’t pick up my scrip till Sunday afternoon and it was too close to taking methotrexate at that point, I thought.

And I am SUFFERING for it this week! I felt sick as an <insert animal here> on Tuesday and wasn’t quite sure why, but then did feel somewhat better just with the realisation is was the darned folic acid (or lack of it). Felt a bit better Wednesday, that being folic acid taking day, and felt better and better throughout the day and thought I was over it … right up until six o’clock this morning! No folic acid today (I take it Wednesday, Friday, Sunday) and although I’ve taken an anti-sickness tablet I still feel bloomin’ awful! I had breakfast this morning and I suspect I’ll be skipping lunch because the thought of food is making my stomach heave! Hubby might have to fetch his own dinner tonight too!

I HOPE it’s just the folic acid that’s doing it but it does seem likely since the whole point of it is to mitigate the sickness and I missed 2/3 of my dose last week! I hope you’re all having a better couple of weeks than I am!

On the bright side, last weeks flarette seems to be largely over so that’s a big positive. I am planning to go to Pilates this week, having missed last week, but I don’t know how much she’ll let me do! Will have to wait and see. I’m gradually trying to build up exercise again while continuing to give the arms a bit of a rest, because I’m sure lack of exercise isn’t helping the stomach issues either! It’s a cocktail of bits and pieces all coming together to make an icky-sicky penguin – definitely more of a Molotov than a Tequila Sunrise!

Blood test sorted – for this month at least!

January 23, 2019 at 12:28 pm | Posted in arthrits, arthrits, rheumatoid arthritis, fibromyalgia, joint pai, rheumatoid arthritis, rheumatoid arthritis, rheumatoid arthritis (RA) | 6 Comments
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Incredible – the surgery being polite and helpful! What’s going on?!

I just phoned the surgery to book my annual arthritis review with the nurse, and she asked if I’d had the fasting blood test yet, as should have in advance. I explained that I’d tried but unfortunately I’d been in twice and they’d run out of slots (you have to turn up on the morning, you can’t normally book an appointment.) She explained that half the staff are off sick at the moment and they’re really struggling – I really appreciated the frankness and honestly, and let’s face it, with a combination of the stress they’re under a waiting room full of germy patients every day, it’s hardly surprising!

She said that the best thing to do was come really early and wait outside – which is interesting because that’s something they were VERY strongly discouraging a few years ago and I know the phlebotomist I saw last time was moaning that if people would only spread themselves out a bit  and not all come first thing, they wouldn’t have the problem – obviously no one’s talking to each other again!

Anyway, I pointed out that thanks to my arthritis I couldn’t come and stand outside for 20 minutes in the freezing cold just to try and get a ticket – there’s no seating out there at all and no shelter from the rain.

She then said that if I didn’t mind a really early appointment the nurses were running an early clinic in February to try to catch up. Well – that solves all my problems – no queuing outside, no waiting for an hour to be seen because I’ve got the first appointment, no having to take time out of work time because it’s well before work starts, and no sitting starving because I’ve missed breakfast – because I’ll have had the test before my normal breakfast time.

The only issue for me is going to be remembering about it! Thank goodness for technology. I’ve put a note on my online calendar reminding myself the day before to set up an alarm on my phone and iPad to wake me up half an hour earlier than normal as the appointment is actually at normal ‘getting up time’.

Round and round in self-diagnosing circles

January 18, 2019 at 12:38 pm | Posted in rheumatoid arthritis (RA) | 6 Comments

Once upon a time (last Sunday as it happens) Polly was doing her weekly shop and BAM, something strange happened!

I was literally one minute thinking, ‘I need to buy a lettuce’ and the next, ‘Oh boy – I REALLY don’t feel well!’ In fact I felt so unwell I forgot to buy the darned lettuce, which proved most annoying at Monday lunchtime! I just felt suddenly tired and woozy and rather bunged up … oh and ACHY, as in joint achy. The suddenness with which it came on made me think, ‘Oh-oh, flu!!’ So I said to Hubby, ‘You’re driving home’ and then I kind of flopped and let him take over. When we got home I went straight to bed and took a decongestant tablet and, just in case, a migraine tablet. I also took my temperature – absolutely normal, which was however a fraction raised for me – i.e. it was 98.4 and my normal is about 97. Nothing to write home about though.

When I woke up I felt quite a lot better, although not good. Hmm, I thought – probably not flu then, just a cold. Monday I woke up feeling much better but still rather achy and VERY tired, but I hadn’t had a good night so put it down mostly to that.

Tuesday my left arm was REALLY playing up and, alarmingly I was having carpel tunnel symptoms in my left hand. This is extra alarming for me because I basically type for a living! I also had significant pain in my elbow in the same arm. I looked things up and found that there’s something called cubital carpel tunnel syndrome where swelling in the elbow (often caused by arthritis) traps a nerve and causes carpel tunnel in the hands.

So so far I’ve potentially self-diagnosed with flu, a migraine, a cold or cubital carpel tunnel syndrome. Anyone spotted what’s missing here? Well … I didn’t!

I gave myself a wee break from Wii’ing to rest the arm and felt quite a bit better Thursday but did notice that my OTHER elbow was also painful and that other joints were still quite achy, not really bad, just quite achy, and that I was sooooooo tired, in spite of having slept OK most nights this week … and FINALLY I put two and two together and realised I was/am having a ‘flarette’.

I’ve read about the symptoms of RA feeling like flu but it’s never happened to me before – so now that’s something else to add to the things I need to look out for, as I tend not to be brilliant at spotting these minor flares!

Of course I’m glad I get them so rarely now that I don’t immediately think ‘RA’ – that’s great – but I do feel a bit silly that I didn’t realise earlier!

And in other news…

November 20, 2018 at 4:29 pm | Posted in rheumatoid arthritis (RA) | 9 Comments

I’m slowly, slowly losing weight, but as long as it’s going in the right direction that’s fine by me! I was worried that with winter around the corner, and now working from home too, I would be less inclined to go out for my lunchtime and pre-work walks … and indeed, that has been the case, especially on days like today when it’s pouring with rain … BUT, thanks to an offhand remark from Rick, as a comment on one of my other posts, I thought maybe I should try a Wii to do exercise indoors instead.

Well, I’m not sure if it’s working weight-wise but I’m really enjoying it, so thanks Rick and thanks too to my bro and sister-in-law for lending me their Wii! I was a table tennis pro yesterday (ranked over 1,000) for the first time … sadly today I came crashing down and am now ranked something like 611. At that point I gave up and went for ‘speed slicing sword play’ instead to vent my frustration! But frustration or not, it’s a lot of fun, it’s exercising bits of me that don’t get exercised when I go for a walk and I hope it’s doing some good weight-wise too.

At the moment my RA is very quiet, as I said in my last post, so that’s great, and my energy levels are reasonably up. In fact this weekend, rather than flooping about all over the sofa and watching too much telly, as I tend to do on less energy-fueled, more RA-related weekends, I made a bag, spent three hours clearing out the under-stairs cupboard on Saturday morning, went to dinner and an opera on Saturday evening, went for a drive (admittedly hubby driving) and coffee on Sunday morning and then went to a concert on Sunday afternoon – and didn’t even feel all that tired at the end of it.

Here’s the bag – I want to show it off and I won’t be able to do so in the flesh probably until next summer as, being cream background, it’s definitely more of a summer bag! I didn’t actually need a bag but I couldn’t resist this crazy beetle fabric!

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I even beaded the beetle on the flap:

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And kudos to my mum for politely admiring it instead of running away screaming ‘too many legs’! (She can just about cope with six-legged things but any more than that … not good!)

So, that’s my news – I suppose I should write about working from home at some point. The hows and whys and how it’s going – perhaps that’ll be my next post; although more likely I’ll just forget all about it. We’ll see … thanks for visiting!

Hospital appointment

November 14, 2018 at 2:55 pm | Posted in rheumatoid arthritis (RA) | 1 Comment

Well, to use once again one of hubby’s favourite phrases, ‘That went better than I expected.’ Mind you, that might be because I’m doing well right now (or I was before I dug a 32-year-old sewing machine out of the cupboard just now) and consequently I didn’t want anything from the hospital except a quick in and out so I stay in the system for when I need help!

Anyway, I arrived in good time and only had to drive round the car park twice before I spotted someone heading out and was able to nab their space. The rheumatology clinic was heaving, partly because there were three consultants, four registrars and two nurses all seeing people separately, and partly because while everyone else was running dead on time, my consultant was running late.

Still, I got chatting to a lady sitting next to me in the waiting room and said to her what I’ve said before, ‘ If I need that sort of time one day, I’ll want him to spend it on me, so I can’t complain when someone else needs his time and he gives it to them.’ We had a bit of desultory chat but she soon lost interest in chatting to me when she released I wasn’t going to join her in moaning Minnie-ishness!

Anyway, I saw my actual consultant rather than a registrar for a change. He was in super cheerful mode – strange guy, blows hot and cold mood-wise and always seems to be in a better mode the later he’s running! Perhaps he’s just glad to see me because he knows I won’t take long?

‘Gosh, last time I saw you was in 2014’ he said. ‘If it’s another four or five years I’ll either be sacked or retired!’ I didn’t ask what he’d done or planned to do to be sacked but I’d love to know – I think working in the NHS gets to them all eventually!

We had a pleasant chat and he read through some of the notes including the fact I’d turned down a knee aspiration earlier in the year, which he commented on. I explained that I wasn’t keen due to past experiences but also that I was just coming out of a flare when I saw the nurse and that’s why the knee was swollen. A few weeks later when the aspiration appointment came around, it wasn’t swollen anymore! I did point out that she didn’t seem to believe I’d actually had a flare and he just looked at me and rolled his eyes expressively. Of course he could have been rolling his eyes at me, but it certainly felt, given the general tone of the appointment that he was rolling his eyes in sympathy with me and I suspect his opinion of their lovely nurse matches mine! Hopefully the next time I have a nurse appointment I’ll see the really lovely nurse. I hope she’s still there!

I’ve now found out why when I rang the helpline last time (earlier this year for a knee flare), the nurse seemed rather rude and abrupt whereas previously she’d been lovely – of course it was the new nurse, not the lovely longer-term one. Duh! They have rather similar names and I misheard on the phone.

Anyway … at one point my consultant commented, ‘Gosh, you’re rather bendy, aren’t you?’

‘Yes,’ I said, ‘It’s been commented on before … by you … probably in 2014!’ He laughed and asked if I could bend my thumb back onto my arm and when I said, ‘Nowhere near’ he lost interest… again.

Then he examined me knee! ‘Good heavens, that IS swoloen!’

‘No it’s not’ was my indignant reply, followed (after some squawking as he prodded it) by, ‘It always hurts if you prod it but this isn’t swollen for me. I’m walking 2-3 miles a day on it and it doesn’t hurt.’

He gave me one of those old-fashioned over the glasses looks and said, ‘Hop on the couch then.’ He then proceeded to do a more thorough examination and, after more Pollyanna squawking as he prodded and poked, he said, ‘OK, I might have been exaggerating!’

I did say that if I was finding it a real problem I WOULD get in contact and ask them to aspirate it … honest guv, and he finished off the appointment by saying, with a grin, that I must get in touch if I needed anything, anything at all … such as a knee aspiration…

I hope I don’t need to!

Wind out of my sails!

November 9, 2018 at 5:31 pm | Posted in rheumatoid arthritis (RA) | 3 Comments

I have a hospital appointment on Monday – oh happy, happy, joy, joy … NOT! The last one did NOT go well. It was almost as though the hospital went back in time and thought ‘You know what we’re missing? That absolutely bitch of a nurse practitioner who retired a few years ago – let’s get another one of those,’ and they did. <Sigh> I see I never posted about that appointment. Basically, after the registrar telling me six months before that my ESR (erythrocyte sedimentation rate, a measure of inflammation) had been up for a while, much to my surprise, and increasing my methotrexate, the nurse then said ‘Oh, ESR isn’t a good measure anyway, and I don’t think you’ve been flaring at all’ and was really dismissive of everything….except that she did offer me a knee aspiration, which I ended up not needing as the inflammation went down by itself … after the flare that I apparently hadn’t had settled down. <Sigh>

I pointed out that my ESR rates had consistently been high when I was having a flare and low when I wasn’t, so even if my rates were a little higher than they should be all the time (potentially due to weight (too much of it) or hormones (all over the place)), they clearly did show when I was flaring and I felt that was important.

She said that CPR (C reactive protein) was a better measure and that when my ESR was up my CRP would be too, even if it was within normal levels. Now she’s not alone here – the general view is that CRP is a much better test, but I pointed out that since my CRP levels were never abnormal, surely the ESR was actually a better measure for me.

Now although I have blood tests monthly, the surgery doesn’t always get ESR tested because, as I said, it is generally considered to be less reliable than CRP, which is tested every month, but curiously, since that last appointment with the nurse the ESR has not been tested at all! Not once!

So … hospital appointment on Monday and I was spoiling for a fight, all ready to go in, all guns blazing, asking why these tests had been stopped and pointing out that they were the only ones that ever showed an issue. Having trained as a scientist though, I thought I’d better have all my data to hand as ammunition so this afternoon I sat down, got all the data off my surgery records and plotted it on a graph.

The results were … interesting, and the wind has been rather taken out of my sales. Here they are:

Graph of flares versus ESR and CRP

Graph showing flares against ESR and CRP

 

You’ll notice the ESR line is broken in several places – that’s because of the several months they didn’t test it. But here’s the thing … the flares (shown in red and of course my entirely subjective opinion of how bad they were) do indeed match fairly well with the elevated ESR … but I also noticed that my CRP, which I’d never properly looked at before because it’s always so low, does actually increase along with the flares, although it’s still well within normal limits (shown by the pale blue line at 10).

So, after an hour or so of data collection, graph plotting etc. I find I actually have nothing to fight about. She was right all along … .which is kind of annoying because, as you may have gathered, I really didn’t like her!

Of course the fight will come next time I have a flare, trying to convince either the GP or the hospital that a CRP of 2 or 3 … or if I’m ‘lucky’ 6 or 7, is actually enough to suggest something abnormal going on, even though ‘normal’ CRP can be up to 10! Ho hum …. that’s a battle for another day, and may that day be a loooooooooong time coming!

Research – RD Blog Week Day 4

September 27, 2018 at 4:24 pm | Posted in rheumatoid arthritis (RA) | 1 Comment

This is today’s RD Blog Week topic:

Research – Do you incorporate research into your disease management? If you do explain how and what difference it has made. If not discuss why not. Help us understand any barriers you have experienced in using research about Rheumatic Disease.

Nope, can’t say I do. When I was first diagnosed I researched everything I could get my hands on about RA, I had books, I read stuff online, I joined societies relating to RA, and what did I discover? Basically that if there is such a thing as a typical RA/RD patient … I’m not it!

I think if something changed in the way my disease affected me I would be researching frantically again trying to discover what was going on and why, but because I’m ‘lucky’ in that my RA is so mild, I work full time and have half a tonne of hobbies, of which RA is definitely not one, that I don’t have a lot of time to research something that isn’t really affecting me.

Last time I did any research was to prove a fully fledged practicing GP wrong when she told me that methotrexate was a steroid (it’s not), an anti-inflammatory (it’s not) and that the way it works in RA is completely understood (it’s not!) Fortunately she was not my GP – just someone I met socially!

What I do do, however, is participate in as much research as I can. I’m a member of all sorts of societies pertaining to pain, arthritis etc. and they periodically throw up research projects that are taking place, and whenever I’m eligible, I participate, and generally blog about it too, such as this one about a recent sleep study or this one about body image where i couldn’t post any results because the technology failed us and I never completed it! I’ve taken part in three or four studies in the last year or so, on top of the long-term ongoing epidemiology NOAR study that I’m part off, which I just had my ten-year anniversary visit with! I’m keen to participate in the hopes that the research will do some good somewhere along the line and help others, and also because knowing I’m not ‘typical’, I want that atypical type of disease presentation also represented in research so that people coming along and looking for things in future might find more that relates to them than I did, when doing their own research.

Keeping fit with RA

September 26, 2018 at 6:16 pm | Posted in rheumatoid arthritis (RA) | 5 Comments

So Tuesday’s prompt for RA Blog Week 2018 was about how we stay fit with RA. Ha! I’ve never been fit in my life – however, I am, I believe, getting fitTER. The main RA-related thing I’ve been doing is one-to-one Pilates classes with a lady who specialises in helping patients with various joint problems back to fitness. I must have been doing that for a couple of years now and she’s marvelous! Her main tenets are if it hurts, DON’T DO IT, and while things aren’t hurting, build up the muscles around the joints so that when the next flair happens the muscles in the rest of the body can cope better with, for example, lugging my big bod around when the knee’s bad. I go once a week (approximately, if I’m not on holiday, she’s not on holiday etc.) to a fully equipped Pilates studio in Norwich and get myself hooked up to all sorts of weird and wonderful springs and rods and things, and strengthen away for an hour – and have FUN. We’re both gigglers and sometimes the other teachers/students must wonder what on earth is going on!

The other thing I’m doing is losing weight – not by any miracle drug or miracle regime. Simply by eating less and moving more. It seems to be working for me – SLOOOOOOOOOWLY but it’s working. I’ve lost 19lb since March in a fairly steady decline, although it has slowed after the first 5 or 6 lb just fell straight off!

Obviously the less extraneous weight you have pushing down on a flaring joint, the better you’re going to feel, so I’m slooooooooooooowly getting read of that extraneous weight. Sadly I have a long way to go – but happily it’s working.

Eating less involves not eating the things that I’m tempted by, such as chocolate, cakes, anything sweet, in the week, and limiting it to one or two at weekends. Of course I’d lose weight faster for a bit if  I cut all that bad and lovely stuff out completely … but then I’d just fall of the wagon big-time and put it all back on again. I’m seeing this 5 days of sensible eating and 2 days of SLIGHTLY less sensible eating as more of a lifestyle change than a diet, and therefore something I can and will keep up.

Moving more involves really trying to get out for a little walk first thing in the morning before work and another one at lunchtime. My RA is VERY mild and well controlled but I’m still not really in a position where I can more ‘serious’ exercise and you couldn’t get me into a gym for a million pounds! I really don’t know how that’s going to go once winter kicks in. It’s hard enough to do the first thing in the morning one now, with bright sunshine and 9 degree temperatures. What about when it rains and it’s minus 5? I don’t know! Also, as from October, I shall be working from home rather than from an office a couple of miles down the road, so will I be able to push myself out of my cozy house for a ‘nice’ walk in the snow and ice? I doubt it. I’m thinking exercise vids may be the way to go for at least some of the winter!

So wish me luck for the next few months and then hopefully I can get back to really regular walks in the spring!

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