Post-flare milestones!

June 15, 2018 at 10:15 am | Posted in arthrits, arthrits, rheumatoid arthritis, fibromyalgia, joint pai, rheumatoid arthritis, rheumatoid arthritis, rheumatoid arthritis (RA) | 6 Comments
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I’m feeling pretty pleased at the moment. I think the flare has finally, well and truly gone. I finished the steroids yesterday – or rather I should have done. Mysteriously there’s three left so I obviously took 6 or 7 on a couple of days instead of the correct 8. OOPS!

  1. Anyway, that’s number one, steroids finished!
  2. Yesterday, for the first time since the flare started about two weeks ago, I took only paracetamol (Tylenol) and no Ibruprofen. (Obviously when I say only paracetamol, I also took all my usual arthritis meds, but no extra pain killers except paracetamol.)

Continue Reading Post-flare milestones!…

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Please stop stealing my blog posts

June 13, 2018 at 10:03 am | Posted in rheumatoid arthritis (RA) | 3 Comments

This is a blog about sites that steal other people’s content to earn them a profit through rather dodgy advertising – you know the sort of thing – ‘Get a million dollars of free goods on Amazon: click here’ or ‘Lose 36lb in 3 days just by clicking this link’. They feed on the gullibility of naive people, and oddly enough, that’s not what motivates me to write and not what I want my writing used for, thank you very much. It’s not that I think many people are actually reading my content on these sites but that’s not the point!

One such example appears to be Health and Fitness Recipes .com* – I’m not writing it out as a proper web address because the last thing I want is a link to the site! However, I’m publishing these here to see if they automatically scrape this one too. Then if anyone reads it there they will know what’s going on!

I’m not sure what triggers the site to be scraped – perhaps some keywords like medical, doctor, health, fitness, RA, rheumatoid arthritis, surgery, GP … who knows. There’s a tasty little smorgasbord of keywords for you though, if you want to steal this one, guys.  Continue Reading Please stop stealing my blog posts…

Quick update

June 12, 2018 at 12:26 pm | Posted in rheumatoid arthritis (RA) | 6 Comments

On the bright, Pollyanna side, I managed to have an enjoyable, if sedentary, weekend! I did pretty much nothing but rest – rest and read books, rest on a chaise longue in the sunshine, rest and chat to my mum, rest and watch telly, rest and do some drawing and painting, rest and do some embroidery … SLEEEEEEEEEEP! Hubby was marvelous and did … well, everything else really!! And yes, my knee is very much better! The steroids (and rest) definitely helped.

Continue Reading Quick update…

‘That went better than I expected!’

June 8, 2018 at 2:13 pm | Posted in rheumatoid arthritis (RA) | 6 Comments

The above is one of hubby’s favourite phrases, and one of the first things that alerted me to the fact that he’s not a natural optimist, but today I found myself saying the same thing.

I realised this morning that there was no putting it off – I’ve been flaring for the last three or four days and I had to see the GP. If you read this blog much you’ll know how much fun that can be and why I was putting it off! After a few days of resting as much as possible, alternating painkillers, putting on compresses, rubbing in gel, bathing and, ultimately, realising I’d been overdosing slightly on the ibruprofen by mistake, the time had come!

Continue Reading ‘That went better than I expected!’…

Thank you Healthline!

June 5, 2018 at 12:07 pm | Posted in rheumatoid arthritis (RA) | 7 Comments

I’m chuffed to bits to once again have been listed as one of Healthline’s RA blogs of the year, even though as ever I haven’t posted very much. I’m actually having another knee flare today (with various other painful bits but that’s the worst bit as usual) so it’s nice to have something to celebrate a little bit too! Continue Reading Thank you Healthline!…

Sleep and sleep study update

April 4, 2018 at 9:30 am | Posted in rheumatoid arthritis (RA) | 8 Comments

Well I’m at day 22 (I think) of the 30-day sleep study. It’s been interesting for me to monitor my sleep and I do hope I get to see a week’s worth of data from the fit-bit equivalent thingy I’m wearing, as the study coordinator mentioned this should be possible. At the moment I’m monitoring how I THINK I slept each night and also how I feel each morning and evening. What I’m intrigued to know is if I did sleep how I think I slept. Continue Reading Sleep and sleep study update…

Another flare and another study

March 6, 2018 at 12:26 pm | Posted in arthrits, arthrits, rheumatoid arthritis, fibromyalgia, joint pai, joint pai, rheumatoid arthritis, rheumatoid arthritis, rheumatoid arthritis (RA) | 6 Comments
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I’m just getting over yet another flare. I had a few days of feeling fine, and then bam, one of those horrible all-over body flares. No individual joint was so bad that I felt the need to visit the doctor or phone the helpline or beg on bended knee (impractical in my case of course) for MORE steroids, but with what felt like every joint in my body stiff and achy, it was a pretty miserable couple of weeks. (Yes, I’m well aware that ‘every joint in my body’ is hyperbole, but it gets you down and makes you feel like that’s what’s happening.’)

I have now started by higher dose (20mg) of methotrexate and taken it twice so far, second time last night. It’s pretty unlikely to have any immediate effect but I’m hoping that it will at least have an effect. We shall see …

Anyway, right now things are relatively good – pretty stiff in the mornings, with some aches and pains, and then it all fades and I’m pretty much OK for the rest of the day … until night-time, which is literally a pain! Continue Reading Another flare and another study…

Do as I say, not as I do!

February 12, 2018 at 4:29 pm | Posted in arthrits, arthrits, rheumatoid arthritis, fibromyalgia, joint pai, joint pai, Me, rheumatoid arthritis, rheumatoid arthritis, rheumatoid arthritis (RA) | 6 Comments
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I’m sure I’ve banged on at least once or twice on this blog about how important it is for the patient to manage their own illness as much as possible, and how important it is to keep a track yourself of your blood test results etc.

Weeeeeell, I’ve had this dratted disease for over ten years now and for quite a lot of those years I assiduously kept track of my blood test results, which never showed anything in all that time. And eventually, what with a change in the system that meant we only see the Rheumy nurse once ever three months, and they stopped issuing booklets with the results in, and given that the results never showed anything, I stopped looking. They’re available to me on line but I just didn’t bother.

So, fast forward to my last flare, not that long ago, a couple of weeks ago in fact, when the doc told me my bloods were up and I said ‘But that never happens’, turns out it happens more often than i thought.

I mentioned in that last post that my hospital appointment had been cancelled, and they originally said the next date was July (!) but then I got a call to say they were putting in a clinic to make up for the cancelled one, and that was last week … so off I toddled dutifully to the hospital. As could be virtually guaranteed, although my knee played up slightly the day before the appointment, it was fine on the day –  thankfully the steroids had done their job! Continue Reading Do as I say, not as I do!…

Good news and bad news … and good news …

January 29, 2018 at 10:38 am | Posted in arthrits, arthrits, rheumatoid arthritis, fibromyalgia, joint pai, crafting, joint pai, rheumatoid arthritis, rheumatoid arthritis, rheumatoid arthritis (RA) | 8 Comments
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Well the good news is that my poor, neglected blog has been poor and neglected since RA Blog Week in September of last year because I have been really well! I’ve had the odd hip pain but only when in bed, which means I never remember to ask the doc about it because when I’m awake, I’m fine! Other than that I’ve been OK. In fact at the beginning of the month my regular 6-monthly hospital appointment was cancelled at the last minute because the doc was sick. The beleaguered receptionist rang to let me know and to apologise and was very pleasantly surprised when I said, ‘That’s fine – saves me coming in on a horrible, foggy morning and waiting around!’ ‘Oh,’ she said, ‘that’s not the reaction I’ve had so far!’ I pointed out that I felt fine and was busy at work and delighted not to have to waste all our time and she said, ‘You’re the sort of person I LIKE to ring!’ I wished her luck with the rest of the calls and that was that.

The following week I had a day off to do a textile workshop, which was great fun. (I was learning, not teaching. My last attempt at teaching was risible and should be enough to put me off teaching a workshop for probably another 10 years or so!) At the end of the day though I had TERRIBLE lower back pain – one of the worst pains I’ve ever had. I just didn’t know what to do with myself. Luckily after an early night it settled in to unpleasant but not terrible lower back pain for the next week or so. The very day after that back pain started I had my regular monthly blood test, which I thought no more about. Continue Reading Good news and bad news … and good news ……

Great Blogs I have Read this Week

September 29, 2017 at 12:51 pm | Posted in rheumatoid arthritis (RA) | 6 Comments

It’s the final day of the 3rd Annual RA Blog Week – thank you Rick for getting me posting again – I wish you had time to do this monthly throughout the year so that I’d get blogging more! Today the prompt is to discuss great blogs I’ve read this week.

I have read a LOT of great blogs this week, some from old friends like Cathy and Rick, some from people I hadn’t come across before and some from new bloggers. Way, waaaay too many to mention but here are a few that stood out for me.

On mental health day, Cathy posted a lovely, thought provoking and positive blog. It was also great to read Steph’s blog from The Young Face of Arthritis – especially ‘Don’t. So true. (What am I on about? Go read it!) Some people are going through hell at the moment and still have found the strength to comment on mental health. The one that stood out here for me is from Unexpected Advocate – the says ‘Answers? Hell no!’ But then she gives a pretty good answer at the end I reckon: “I only have one life to live. I will not miss it because I am bitter or angry.” Go girl!

Then we had tips and tricks – I’m sure there are loads and loads of fine ones out there, but I haven’t had time to read them all yet, except for Leigh’s. Unlike any of my posts ever, this is short, sharp and to the point – taking in the big picture very nicely.

Then we had Partners. Many, many of us are so darned lucky with our partners, most certainly including me! Leigh, aka Phat50Chick, is one of those, and Cathy and Rick again, and also Lori, the Chicken Whisperer! And then, something completely different! Lene’s best friend is … her body! A fascinating, super-positive read!

And finally … hobbies. It’s sad to hear how many people find their hobbies harder, such as Leigh, who’s had a really rough time of it this year. But she’ll persevere, I’m sure, as have PsA Mermaid with her beading, and Aimee over on Capture, Craft, Cook, who sounds a bit like me (a little over-hobbied but loving it).  I also enjoyed Rick’s very entertaining post on inheriting his father’s collecting bug!

I’ve read so many along the way but failed to make notes or be in any way organised, so those who I haven’t mentioned – you still wrote great blogs!! Thanks to everyone who participated in RA blog week and special thanks to Rick for organising it. I’ve had a blast and hope you’ve all enjoyed it as much as I have.

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