Tags: arthritis, diagnosis, doctor, GP, RA, Rheumatoid arthritis, rheumatoid arthrtis helpline, steroid, steroid injection
I’ve had a frustrating morning – can hardly lift my left leg at the moment and both knees very painful, and so I phoned the rheumatology helpline at the hospital and explained the problem. My nurse actually answered the phone. Oh good, I thought. She didn’t remember me … but I can’t blame her for that as we’ve only met once. It’s still good because if someone else answers they say ‘Oh you need to speak to Jean and she’s in clinic…’ , so at least I jumped that hoop.
Told her the problem. ‘What do we normally do about your knees, Penguin?’ she says. Well that’s helpful.
‘Well since I only got a diagnosis in April and this hasn’t happened before, not a clue!’
‘Oh, well if it’s specific joints we usually inject them with steroids’ …lovely, ‘and local anesthetic’. Presumably to numb the pain from having the injection, rather than the pain I’ve already got. Oh joy!
Hmm, in my naivety I’d been anticipating more of a tea and sympathy approach followed by something like ‘try a support bandage’ or ‘have a hot bath’ … guess I have a lot to learn about RA!
The nurse continued, ‘But you need to see your GP first to confirm it’s to do with the arthritis. I’d be surprised if it wasn’t.’
‘I’d be bloody surprised if it wasn’t … what else is it going to be?!’
‘Well quite, but as I can’t see them we do need to get someone to have a look …’
Thinks – I can look, I have a brain too, and guess what, my knees are all swollen and I can lift the left one. But no, that’s not good enough.
‘Well it won’t be today, because if you don’t get in at 8.30am they won’t see you on the day,’ I says.
Oh well she says, full of NHS optimism, ‘Phone and see if they have a cancellation.’
They did – tomorrow. So I’ve taken that.
I suppose I can be glad about the fact I don’t have to queue up at 8.30 tomorrow morning to get an appointment, only to have to come back at 9.30 to have the appointment, considering how ‘interesting’ standing in line is at the moment – almost as much fun as going up stairs.
I didn’t dare ask how many weeks it would be before I got into the day unit even if the GP did confirm it – or how many weeks it would be for the GP to even write a referral letter.
Maybe I just need to burst in to tears at the GP tomorrow to get something done. Shouldn’t be hard the way I’m feeling.