When Polly met Carla (the sequel)

August 13, 2018 at 12:23 pm | Posted in rheumatoid arthritis (RA) | 5 Comments

So, what was that rare treat you had Polly Penguin, I hear you all crying? Well, no, I don’t actually because the title kind of gives it away … YES! For the second time ever, two years after the original When Polly Met Carla, Carla and I managed to meet up, during a brief drop in to the UK for Carla and Hubby. I’m very flattered that they arrived in Heathrow one day and then had six hours of train rides the next day to come and see me! It was so good to meet up with Carla (and hubby) again and catch up on all the news … and luckily the pub/bar/restaurant we’d picked had sticky toffee pudding to die for. (Carla would have been very disappointed if that hadn’t been the case … apparently you don’t get right over in the US! <grin>)

Among other things I got to here more about all these great patient advocacy meet-ups you guys have over there  … and that brings me to a BIG THANK YOU, to Carla for organising it, Wren for the amazing drawing (as ever) and all you folk that kindly signed it at one of the meetings and sent lovely messages! What is it? I (once again don’t really) hear you cry. It’s this fantastic Wren original card:

Wren Carla Card

inside card

Isn’t that great? Wren said she started the card when it was raining buckets on this side of the pond and she thought she’d provide some inner sunshine with a nice summery, flowery picture – but when it arrived we were in full heatwave mode. Still, a nice, summery card was entirely appropriate for a heatwave and definitely is doing its inner-sunshine providing job now, when it’s been raining consistently for a couple of days!

So thank you again all who signed it, thank you so much Wren for the lovely card and Carla for organising it and of course hand-delivering it! 🙂

Maybe one day I’ll get to meet some more of you in person – that would be great!


Phew, what a scorcher!

August 3, 2018 at 8:40 am | Posted in rheumatoid arthritis (RA) | 4 Comments

We’re having a bit of a heatwave here in the UK, and indeed across Europe. It’s getting very unpleasant indeed in parts of Europe, as in life threateningly bad, but here it’s really quite pleasant most of the time. If the heat stays dry I can cope with it, although there have been some mornings where it’s just two darned hot to go for a walk, which isn’t so good.

Now this might just be coincidence because having taken part in a six-month study about pain and weather where my results were totally inconclusive I appreciate it’s easy to see patterns where they don’t exist, but … during the first part of the heatwave before we had a massive and rather delightful storm on Friday night, my RA … wasn’t. I was pretty much symptom free. I’m never too bad, I only have the mildest of mild RA, but I normally have aches and pains at various points during the day. During most of that hot and sunny period – nada! Then the storm broke and within a few hours I was back to the usual aches and pains. We had a few days of clouds and rain, which was lovely after all that melting in the heat, but my aches and pains came back. Now we’ve had a couple more days of serious heat and … well, I’d love to say the pains have all gone again but the truth is my hands are killing me and I’m not sure how I’m going to get through the day. Glad I finish work early today to go to Pilates but may have to tell the teacher I can’t hold onto anything for very long!

So … inconclusive once again!

On the bright side, I had a real (and very rare) treat yesterday … but I’ll save that for another post. 🙂 Since the treat involved a meal out, I might have eaten something that made my RA tingle a bit … that’s the trouble with all these epidemiological studies. They look at one aspect (or a number of aspects) but can’t control for all the others. Not a criticism – just the way it is!

So, signing off now to … carry on typing! This is one of those days where my job is not the ideal one for someone with RA! Bye for now and wishing you all a pain-free day.

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