Next week is RA Awareness Week in the UK and the busy bees at the National Rheumatoid Arthritis Society have created a series of wellbeing sessions under the banner #ourmindsRApriority - I do like RApriority ... 🙂 You can sign up for free sessions here. I'm feeling pretty lucky at the moment - I'm OK … Continue reading RA Awareness Week
Well, if you read this blog much you’ll have an idea I’ve been flaring, semi-flaring, recovering from flares and going into new flares, for a wee while now. (Or not - 'cause I realise I've failed to actually post about most of it!) I was quite shocked to find, when I did a little history, … Continue reading Here comes the cavalry
I've often wondered if my use of a LOT of antibiotics round about 2001-2003 might have had anything to do with the onset of my RA - diagnosed in 2007/08 but almost certainly having been around for rather longer than that. During that period I was living on The Fens, a very flat agricultural area … Continue reading Antibiotics and RA
NRAS ran a very interesting webinar this week, ‘What’s new in rheumatoid arthritis?’ by Prof. Peter Taylor, University of Oxford. It is available to watch here: https://www.nras.org.uk/webinar-recordings-2018 and it was fascinating. (You need to put in your name and email, but then you get straight through to the webinar.) He walked us through the various … Continue reading There’s more to life than biologics!
I have just realised I haven't posted on this blog THIS YEAR! Shocking neglect! Part of the reason is that I haven't been having much in the way of RA problems - things haven't been perfect but I've felt generally much better since Christmas than I have for quite a while ... until a couple … Continue reading Woohoo for Pilates… and other news!
In January 2010 I 'reported' that NICE were refusing to consider treatment of early RA with biologics because one had to 'fail' on two other DMARDS first, which would take a minimum of six months, more likely a year. NICE (amusing standing for National Institute for Clinical Excellence, actually have very little interest in clinical … Continue reading NICE is as blinkered as ever: nothing has changed since 2010
Last year I attended the Future of Health 2014 Conference, having applied to be a 'citizen journalist' and tweet about the event. There was a big focus there on listening to the patient, and that's certainly not an isolated event. The excellent Creaky Joints report on the EULAR conference makes it clear that this is … Continue reading Are you tired of not having your fatigue concerns taken seriously?
Well, I meant to write this post about biosimilars weeks ago, but alas, I came back from London and fairly quickly went down with a really bad cold, which I'm still getting over now! It was bad enough, combined with the methotrexate/immunosuppression, to require antibiotics for the secondary infection and it hit chest and sinusses at the … Continue reading Biosimilars
One of the many things people with rheumatoid arthritis battle with is the many misconceptions around the disease, the most ‘popular’ of which is that ‘arthritis is wear and tear on your joints’. One of the reasons this misconception is so hard to grapple with is that it’s true – sometimes. There are many, many … Continue reading RA – it’s not ‘fair wear and tear’!
NRAS (the National Rheumatoid Arthritis Society) are running a series of 10 UK based events helping those with RA to keep working. The workshops will be held throughout 2010 in cities all across the UK. They’re open to anyone with RA and they’re free. Each workshop will allow you to get information about talking to … Continue reading Good old NRAS – Employment courses for UK-based RA sufferers