Tags: birthday, consultant, flare, occupational therapy, OT, physio, physiotherapy, RA, RA flare, Rheumatoid arthritis
At last I’m on my way out of a rather prolonged flare! While I’m sure that my consultant would be pleased to point out that it wasn’t much of a flare – I mean I didn’t even need a steroid shot – it was quite enough of one for me, thank you!
I had a very good birthday this year, in spite of being in the middle of the flare. Hubby had the day off too, which he doesn’t often manage, or at least not to coincide with mine, and we had a leisurely morning in Norwich including a trip to the Castle Museum and lunch at ‘The Waffle House’. Because of the whole flare thing we decided to come straight after an early lunch and I spent the afternoon lounging around in bed reading some of the many great books (mostly embroidery-related) that I’d got for presents, before heading off to Mum’s for a yummy meal in the evening. While I’d have liked to have been able to DO more on my birthday, it was still a jolly good day!
I suppose at least I’m finally learning to pace myself. Talking of which, the OT is NOT in my good books at the moment. I drove for forty minutes in stinking traffic through rain and hail and sleet and snow and fog (and semi-darkness for part of it) to get to my OT appointment only to be told, ‘She’s gone home’. Luckily for both of us I suppose a) I like her and b) I know she wouldn’t do that deliberately and c) she phoned and apologised profusely this morning.
I told her she could make it up to me by fitting me in between physio and a hair appointment next week, which she is doing. I shall come away feeling thoroughly pampered after all that: not quite a luxury spa treatment, and believe me, our local hospital doesn’t bear much resemblance to a luxury spa, but the closest I’m likely to get to one for a while!
Tags: arthritis, exercise, occupational therapist, occupational therapy, physical therapy, physio, physiotherapy, R.A., RA, rhematoid arthritis, rheumatoid, Rheumatoid arthritis, rheumatoid arthritis (RA), wax bath, wax bath therapy
I’m slightly confused because my lovely physio has suggested wax bath therapy for my hands … and referred me to an occupational therapist for it. My confusion arises from the fact that I would have thought that wax bath therapy was a physio sort of thing to do and definitely not an OT thing! I wonder if the OT will say the same when I see her? I wonder how long it will take to see her, given that it took seven months to get a physio appointment.
Anyway, if anyone has ever used a wax bath could they let me know; I’d be really interested to know if it helped at all. I did find a research paper that said it could be helpful in RA if combined with exercises but not on its own – well my hands certainly get plenty of exercise with all the typing and craft stuff, and I do some simple range of motion type exercises in the mornings too, so perhaps the wax thing will do some good.
Tags: arthritis, dycem.com, grip, non-slip solutions, occupational therapist, occupational therapy, OT, RA, Rheumatoid arthritis
I consider myself very lucky that my rheumatology department runs this early arthritis clinic, even if it is a little tricky to get into it (as you’ll know if you’ve read the two previous posts). I don’t think someone with symptoms as mild as mine would normally have access to an OT. Silly little things have become very frustrating over the last few weeks – opening jars, turning on the kitchen tap, which gets quite stiff, and, on bad days, gripping anything that’s smaller than an inch or so in diameter. I wouldn’t have thought to bother a doctor about any of these things but it was great to talk to someone who not only really understood the frustration, but actually had some practical advice to offer. She’s suggested simple pipe lagging, which comes in a rang of diameters, can be slid over things like toothbrushes, hair brushes etc. to make the grip softer and wider, and she’s given me a bit to take away and try. She’s also given me a bit of magic plastic grippy non-slippy semi-sticky stuff. It’s officially known as a piece cut from a Dycem non-slip reel but I just call it magic! It does the gripping for me so I just drape it over the very stiff tap and I can turn it on just using the palm of my hand! I expect one can open jars and things with it too, but they do also make a jar opener so I might look into that. I’ve got a cane with a moulded hand grip for really bad days … although if my knee’s bad then my hands will probably be too bad to use it … at least I have the option though. And finally I’ve got her phone number … which if she actually answers and is happy to give advice over the phone, could be worth its weight in gold.
I really shouldn’t say this, because she was so lovely, but we obviously didn’t share a sense of humour. ‘What do you use to open jars?’ she asked, before providing me with the little slice of blue magic mentioned above. ‘My husband,’ I answered, with a grin, or something as close to a grin as I could manage given my mood. Now everyone else I’ve said this too has laughed, or at worst chuckled, but she took me deadly seriously … and in fairness I was serious, I suppose. I do use hubby to open jars, but that’s never worried me unduly. ‘Hmm,’ she said, ‘now we must maintain our independence, mustn’t we?’ One of my pet hates is being referred to as ‘we’ but I let it go, because really, she was so lovely and helpful.