OK, I'm exaggerating. The flare is real, the existential crisis not so much, but I am wondering whether to continue this blog, as all I do these days is post occasionally to say, 'Hi guys I'm flaring' and then not post for months because I have nothing to say about RA, thanks to being pretty … Continue reading Another flare, another existential crisis…
Next week is RA Awareness Week in the UK and the busy bees at the National Rheumatoid Arthritis Society have created a series of wellbeing sessions under the banner #ourmindsRApriority - I do like RApriority ... 🙂 You can sign up for free sessions here. I'm feeling pretty lucky at the moment - I'm OK … Continue reading RA Awareness Week
Since I started the steroids a couple of weeks ago, I've been ticking of little milestones: today I can bend the leg a bit, today I managed to walk round the garden ... and bigger ones, today I stopped using my stick, today I made it onto my favorite local footpath ... but today's milestone … Continue reading Flare finally over – woohoo!
Here in the UK there are two categories of 'vulnerability' to COVID-19, 'vulnerable' and 'shielding'. I've known I was in the vulnerable category from day 1 - in fact before day 1 of the lockdown. From a week or so before lockdown I was already practicing 'social distancing' and not going into shops etc. because … Continue reading Shielding letter
Well, we're still locked down and I'm just getting used to the various terminologies - I find that I am not 'self-isolating' because that's what people who have symptoms of COVID-19 have to do, but I am vulnerable, although I'm not shielding. 'Confused? You won't be, after the next episode of SOAP!' (Anyone else remember … Continue reading A quick update during lockdown
I've been contacted by a scientist at the University of Ferrara who is looking into whether Plaquenil, also known as Aralan, chloroquine or hydroxychlroquine, can help with COVID-19/coronovirus. Please re-post, write your own version or whatever, if you blog, to get as many people filling this is as we can! Please take the survey here, even … Continue reading Survey about COVID-19 and Plaquenel
There’s a thin line between bravery and stupidity and those of us who are saying they’re just going to ignore advice to self-isolate or socially distance and get on with their lives may be surprised to know that they’ve crossed it to the wrong side! COVID-19 is a pretty low risk disease to the vast … Continue reading There’s a thin line …
While I'm not a hippy-dippy-penguin-chickie, I do firmly believe that a positive attitude is helpful and makes one feel better than not having a positive attitude! After all, it's only common sense that if you go around feeling negative and responding negatively to things that happen all the time, you're going to put yourself in … Continue reading Reframing
Perhaps it was karma, super-fast delivery thereof? I was waiting to go into the bank this morning and an elderly couple were coming down the steps, and taking up the full width so I couldn't get in. Of course I waited, but they were chatting and stopping to examine the handrail (which looked absolutely fine … Continue reading Irritation cometh before a fall?
The NHS consists (partially) of area-based (geographical area that is) Clinical Commissioning Groups (CCGs), who can decide to some extent whether patients are given particular treatments, and exactly what those treatments are. They are basically the budget holders for the geographical area... as I understand it, and my understanding is not great here i confess. … Continue reading Access to biologics in the UK