Tags: arthritis, flare, Let's work together, RA, rhematoid arthritis, Rheumatoid arthritis, rheumatoid arthritis (RA), work, World Arthritis Day
It’s World Arthritis Day and this year’s theme is ‘Let’s Work Together!’ It’s got me thinking about how lucky I am to still be in work considering I’ve got this dratted disease/illness/condition, whatever you want to call it.
I’m very grateful that I can still work, in spite of the R.A. It’s been a difficult road to travel, but I feel not nearly so difficult as for those in employment. Yes, it’s “mild R.A.” but when my symptoms are bad it doesn’t feel mild to me! As a self-employed person I don’t have to worry about breaking the news to the boss, explaining why I can’t play golf with the company, or put up with silly comments or lack of understanding from colleagues. I only have one colleague and she’s very understanding … if she’s not then she does a good job of hiding it, since I’m her boss (at least officially – we suffer from role reversal now and then).
There has been some research, sited in the excellent book on Living a Full Life With Rheumatoid Arthritis by Jasmine Jenkins (a delightful lady whom I had the pleasure to meet in Barcelona – Gosh – who’d have thought you could name-drop in the world of rheumatoid arthritis?), that suggests that self-employed people are likely to remain in work longer than those who are employed. If I remember rightly, since I can’t lay my hands on the book right now, it was suggested that this is due to difficulties with employers. On a bad day I wonder if it’s more to do with desperation – there’s no going off sick and still being paid by the company! On a normal day though I’m grateful that I can take small amounts of time off here and there to cope with a flare, and that I have been able to cut my hours back to normal full-time hours from slightly in sane morning and evening and weekend hours that I used to work, without having to justify myself to anyone except myself.
It would be good if World Arthritis Day, and indeed the My Day for RA site, brought some real understanding of rheumatoid arthritis to those who don’t have it but who have friends, family or colleagues who do, to lighten the load of those people in employment who have to put up with R.A. on top of all the usual frustrations of a job!
Tags: Gloucester, holiday, RA, relaxation, rest, Rheumatoid arthritis, The Edward Hotel, walking, work
Got back from our short holiday this week – five days in Gloucester, very nice apart from the hotel. There is NO excuse in this age of cafetieres and even good instant coffees to massacre a coffee the way they did at breakfast! And as for the ‘friendly welcoming staff’ … well ‘not’ springs to mind. So if you ever find yourself in Gloucester, UK, don’t go to the Edward Hotel.
Anyway, whinge over, apart from that we had a lovely time – no television (I mean there was one, we just didn’t watch it), fun days out, lots of reading and relaxing, only one mildly panicked phone call from my colleague during the whole week, superb food … if you ever find yourself in Gloucester UK DO go to Bearlands restaurant and wine bar (excellent set menu for £15 a head … insanely cheap for what you got. Of course they’re hoping you’ll have a bit to drink … at £4.50 a glass!) and Topoly’s Italian Restaurant.
So all in all a jolly good break … Gloucester itself was a tad run down, due to a combination of the recession and terrible floods two years ago – but the surrounding area is lovely and there’s loads of places to visit.
The RA behaved itself for the first few days and then gradually built up, and my feet have yet to recover from all the walking we did, but it was worth it! Mind you, it was about a quarter of the walking I would have done two years ago, but I try not to dwell on that.
As to coming back to work this week … well, I’d rather not think about that right now! ;o)
Tags: RA, Rheumatoid arthritis, sleep, spring, stress, work
I’ve had a really, really lousy week. Work’s been completely bonkers, I haven’t slept well and I’ve been stressed out of my mind. Funnily enough the RA side of things has been pretty good (not fantastic, but better than for a while!) I’ve noticed in the past that when I get tired and stressed the RA seems to get worse, but now I wonder if I had my cause and effect muddled – the RA was worse, which made me feel tired and stressed.
This time I know it’s work that’s done it, not illness.
I’m having Monday off, that’s THREE WHOLE DAYS OFF IN A ROW! Last time I did that was Christmas, I shall return to work on Tuesday a new Penguin – full of beans and the joys of spring. (OK, so we had hard frost this morning and they’re threatening snow, but hey, the bulbs are string to poke up above the ground, the sun is shining, the crocuses are flowering and tiny cat is starting to go out again – it must be spring.)