See the shattered penguin …

January 25, 2012 at 10:24 pm | Posted in fibromyalgia, Me, rheumatoid arthritis (RA) | 3 Comments
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I’ve spent the last six months on a very useful course run by our local university business school, on helping small businesses to grow. It’s been great and I’ve met some lovely people along the way. Tonight we were asked to do a ‘showcase’ where each of the businesses on the course had a little exhibition stand and said a few words into a mike and generally chatted to invited guests, university bigwigs, previous course attendees and each other.

Unfortunately I was dreading it because I knew the admin was a mess. Fortunately although the admin was a mess, a handful of very brave people had stepped in at the last minute to salvage what they could, and they did a marvellous job. However, as suspected, when we arrived to set up our exhibit, rather than the floor-plan with everyone’s tables labelled, display boards there and of course, vital for me, and definitely requested in advance, CHAIRS, there was organised chaos.

Fortunately the wonderful people who’d stepped in at the last minute were on hand to sort everything out, and equally fortunately we’d brought some folding chairs with us! I did feel sorry for some of the others though, as there were no chairs available at all.

Having said that, once the evening got going I hardly had a chance to sit down, as we were all buzzing about and chatting to each other. There was a really good atmosphere and, in spite of not looking forward to it, we had FUN. On the other hand, I’m absolutely wiped out, completely shattered, totally exhausted … and my left knee is giving me gyp from so much standing around.

Entirely my own fault of course. I had a chair, I have the capability to sit down in it, but I suppose it was partly not wanting to miss out on anything and partly the old not wanting to admit I had a problem, leading to one of those conversations. You know the ones: ‘My auntie’s got arthritis too. It’s all cleared up though since she started rubbing in bindweed’ or ‘all you have to do to get rid of it is lose some weight.’* What I should have done was go and have a chat with the yoga lady and get her to give me some stretching exercises – but every time I looked in her direction (at least right up until the last few minutes) she was deep in conversation.

Oh well, working from home tomorrow so I think that might start with a bit of a lie-in!

* Not that I’m denying that would help!


Answer a few questions to raise money for IAAM

January 18, 2012 at 9:10 pm | Posted in rheumatoid arthritis (RA) | 1 Comment

As you’ll know if you’ve been reading this blog, or many other RA or inflammatory disease blogs out there, for a while, IAAM is the International Autoimmune Arthritis Movement – and it aims to bring help, awareness and understanding to people with autoimmune diseases across the world.

They have a number of interesting and useful projects in the pipeline, and like all charities, they need financial help in getting them going.

Find A Cure Panel (FACP) specialises in patient research for serious diseases including RA – and NEXT WEEK, FACP has an anonymous and confidential online survey for those with RA who are on medication. If you complete the survey, FACP will donate $25 to IAAM!

Unfortunately I can’t participate as it’s for US patients only – but I know a lot of my readers are in the US, so please do take the time to fill this survey in if you possibly can. It’s for a worthy cause!

If you’d like to participate, or see if you qualify, please email AND WRITE: FACP RA Survey/IAAM IN THE SUBJECT LINE. Don’t forget to add IAAM in that email so that they get the funding!

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